BENEFITING: HETEROTAXY CONNECTION
Heterotaxy syndrome is a congenital condition that affects the development, placement, and presence of internal organ. It can affect many body systems and requires a team of many specialists for treatment. Mortality is high and those with heterotaxy who survive to adulthood find their condition largely unknown to the community. The public is largely unaware of heterotaxy, including many medical professionals.
Heterotaxy Awareness Day provides an opportunity for families whose lives have been affected to celebrate life and to remember loved ones lost, and to meet others and know they are not alone.
Thank you for helping us celebrate all of the Heterotaxy Heros and raise awareness of this often devestating condition.