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Heterotaxy Syndrome is a rare illness affecting the placement of organs uniquely in each baby born with this syndrome. Many have severe heart defects, GI abnormalities, lung problems, and immune deficiency. These children often go through multiple surgeries and hospitalizations. Approximately 80% will pass away before their first birthday. We hope to foster a supportive community and educate the medical professionals. With medical technology advancing, we have the power to save lives. Tax ID 20-3097383


Heterotaxy Hope Organization (H20) is dedicated to saving the lives of those with Heterotaxy.  From the tiny babies struggling in the NICU to the adults who have struggled for a lifetime sometimes not even having a proper diagnosis, we are here for you.