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Hope for Julie

Organized by: Tamala Hall

Tamala's Photo
Tamala's Photo
Tamala's Photo
 

Tamala Hall via Crowdrise
August 06, 2015

She is up and walking today. The pain is still high but she is moving around more. No throwing up so far today. See More

THE STORY:

Julie has recently been diagnosed with craniocervical instability and brainstem compression. She has already undergone 2 previous surgeries in the past for Chiari malformation. 25% of symptomatic Chiari patients have complex Chiari with the instability and brainstem compression. It was suspected that Julie fell into this 25%, but wasn't formally diagnosed or treated before. The neurological symptoms are anticipated to continue and progress to the point of being irreversible. Hence why surgery is so important.

Surgery will involve fusing 3 cervical vertebrae with the first one fused to the skull. This will improve the stability and reduce compression by increasing the angle of the brainstem. To put the curvature of the brainstem in perspective, here are some facts: Desired Normal range is between 140-150 degrees, Significant Neuro Impairment occurs at 125 degrees, and Julie's is at 123 degrees. The further the curvature of the brainstem, of course the more symptoms one will have. She will have to wear a cervical collar for 3-4 months and also have physical therapy after the surgery. The surgery is Not curative, and Does come with permanent restrictions, but it gives Julie hope that she will be able to resume being active with her family.

Right now, Julie's symptoms are increasing and severely limiting her daily life. There is the pressure in her head, the headaches, and instability at times...just to name a few. Anyone that knows Julie, knows how much she loves being active and involved with her family and the community. One of her passions is running, she has even competed in half marathons in the past. Sadly, that will never be an option for her again. Although there will be many restrictions and things Julie will be giving up with the surgery, it will in turn give her a chance to maintain as normal of a life with her family as she can. They are her world and she wants to be as much of a participant in activities with them as she can be.

The surgeon that will be performing the surgery for Julie is in NY. Why NY some people may ask.....the answer is that he is within a very limited and small group of specialists that operate with patients like Julie. As far as time off: Julie and some of her family will be flying up two days prior to the surgery. The surgery is scheduled for August 4th. Then she will remain in the hospital for 5 days after the surgery. It will be another 2 days after being released from the hospital before she will be released to fly back home. Then once home, she will be off work a good 2 months. Her paid leave for work will be exhausted before she is able to come back to work though. Then there is the out of pocket cost that insurance won't be covering, the plane tickets, cost of hotel stay while there, and of course food. This a very large and unexpected financial burden Julie and her family are facing. She is one of the most compassionate and generous people that I know, always helping others where and when she can. It's time to help her now in her time of need. Let's help give Julie hope.

$2,670

 

38% Raised of $7,000 Goal

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  • Tessa

    $30

  • Karie Eleen

    $200

  • Anonymous

    $50

  • Anonymous

    $20

  • Eleanor and Dennis Pascual

    $100

  • Anonymous

    $20

  • Linda Wright

    $100

  • Fred Sergeant

    $250

  • Anonymous

    $500

  • Jay and Chris Locklear

    $200

  • A friend

    $50

  • Kline Family/Slinkard Family

    $400

  • Thomas Family

    $100

  • Regan & Mary Jones

     

  • Adams Family

     

  • Greg P.

    $100

  • Huff

    $350

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Organized by

Tamala Hall

This is a direct to organizer fundraiser.

Donor Comments

Huff

Huff

DONATION: $350

Get Well Soon!! 3 years ago

Greg P.

Greg P.

DONATION: $100

3 years ago

Adams Family

Adams Family

We appreciate all the years you have worked with Nathan and for your friendship. We pray God blesses you with a speedy recovery. 3 years ago

Regan & Mary Jones

Regan & Mary Jones

We love you. 3 years ago

Thomas Family

Thomas Family

DONATION: $100

Praying for a speedy recovery! 3 years ago

Kline Family/Slinkard Family

Kline Family/Slinkard Family

DONATION: $400

Jules, we're all praying for you today as you prepare to undergo another surgery and recovery. We love you!!! 3 years ago

A friend

A friend

DONATION: $50

Prayers for swift healing! 3 years ago

Jay and Chris Locklear

Jay and Chris Locklear

DONATION: $200

Praying for you Julie. 3 years ago

Anonymous

ANONYMOUS

DONATION: $500

Julie our prayers are with you for safe travels, successful surgery, and quick healing. God bless! 3 years ago

Fred Sergeant

Fred Sergeant

DONATION: $250

Love and prayers. Julie will be fine I know it. 3 years ago

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