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Lena DeSantis' Fundraiser:

ReverseRett 2014: Hope for Maren

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BENEFITING: Rett Syndrome Research Trust

EVENT DATE: Nov 03, 2014

Lena DeSantis

THE STORY:

In December 2012, Maren was diagnosed with Rett Syndrome, a neuro-developmental disorder caused by random mutations in the MECP2 gene. After a period of seemingly normal development, our bundle of beautiful energy and joy lost the ability to talk, walk and use her hands, and now faces a future of possible seizures and scoliosis. Simply, Rett is horrible.

But along with this terrible diagnosis comes amazing hope. Researchers have completely reversed Rett in mice and recent studies suggest that the same is possible for humans.

We are entering a new phase of Rett research in which clinical trials have begun. It’s a phase where there is likely to be a direct impact on Maren’s life. But we need support to make this happen. We truly believe that Rett can be treated and eventually cured. The science is almost there but like so many things, the money is not.

We are co-chairing a benefit in New York City on November 3, 2014. The event raises crucial funds for the Rett Syndrome Research Trust (RSRT). While we know everyone cannot attend, we hope you take the time to watch the video and learn more about Maren, Rett and our hope. Any donation of any amount is appreciated, whether it be in dollars, love or prayers. All money raised goes directly to RSRT.

Please help Maren and all the other girls and women suffering from Rett. Please help give them the chance to soar.

DONATE

To This Fundraiser

$6,328

MONEY RAISED
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  • EJAir Certification Consultants

    $1,000

  • Jennifer Michael

    $500

  • Auntie Dawn

     

  • Kelly & Philip Sayce

     

  • Lynn ( Lily's mom)

    $50

  • Anonymous

    $25

  • Lisa W.

    $100

  • Elizabeth Perkins Wilder

     

  • B Jones

    $50

  • Shane "Buddy" Berry

     

  • Christine Griswold

    $100

  • Anonymous

    $40

  • Anonymous

    $30

  • Mageara Cameron-Spell

    $100

  • Mary & Wally Senff

    $100

  • Cindy Kerber

    $30

  • Erik and Sue

    $100

  • Anonymous

    $100

  • Derek

    $300

  • Eryn Ferdman

    $25

  • Anonymous

    $50

  • Debra H.

    $30

  • Anonymous

    $25

  • Tina Harris

    $50

  • Deana & Rob Finora

    $100

  • Anonymous

    $10

  • Rich & Penny Maun

    $100

  • The Andersons

    $150

  • Chris Abbott

    $25

  • Mauricio Family

    $100

  • Tracy Dubovick and Christopher Wynder

    $25

  • the Duffeys

    $50

  • Mia and AJ Laplace

     

  • McCallion Family

    $100

  • Anonymous

    $100

  • Kevin Maggay and Kristine Soto

    $100

  • Sharon Yeung & Kubi Ackerman

    $50

  • The Gaines Family

    $100

  • Jacques Bryan

    $1,000

  • cami doran

    $30

  • Christine Honeybone

     

  • DeBrosse family

    $200

  • The Hiers

     

  • Anonymous

    $100

  • Robin Ferdman

    $18

  • The Rebstock Family

    $100

  • Peggy Weisent

    $100

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127% Raised of $5,000 Goal

Fundraise for this Campaign

The Team: $6,328 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Lena DeSantis

Amount Raised

$6,228

 

125% Raised of $5,000 Goal

Fundraiser Title

Penny Maun

Amount Raised

$100

Donor Comments

Peggy Weisent

Peggy Weisent

DONATION: $100

Marin 2 years ago

The Rebstock Family

The Rebstock Family

DONATION: $100

4 years ago

Robin Ferdman

Robin Ferdman

DONATION: $18

4 years ago

Anonymous

ANONYMOUS

DONATION: $100

4 years ago

The Hiers

The Hiers

We think of you all every day!! 4 years ago

DeBrosse family

DeBrosse family

DONATION: $200

4 years ago

Christine Honeybone

Christine Honeybone

4 years ago

cami doran

cami doran

DONATION: $30

Unbreakable! 4 years ago

Jacques Bryan

Jacques Bryan

DONATION: $1,000

We love you Maren 4 years ago

The Gaines Family

The Gaines Family

DONATION: $100

4 years ago