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Penny Maun's Fundraiser:

ReverseRett 2014: Hope for Maren

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BENEFITING: Rett Syndrome Research Trust

ORGANIZER: Lena

EVENT DATE: Nov 03, 2014

Penny Maun

THE STORY:

Lena DeSantis wrote -

In December 2012, Maren was diagnosed with Rett Syndrome, a neuro-developmental disorder caused by random mutations in the MECP2 gene. After a period of seemingly normal development, our bundle of beautiful energy and joy lost the ability to talk, walk and use her hands, and now faces a future of possible seizures and scoliosis. Simply, Rett is horrible.

But along with this terrible diagnosis comes amazing hope. Researchers have completely reversed Rett in mice and recent studies suggest that the same is possible for humans.

We are entering a new phase of Rett research in which clinical trials have begun. It’s a phase where there is likely to be a direct impact on Maren’s life. But we need support to make this happen. We truly believe that Rett can be treated and eventually cured. The science is almost there but like so many things, the money is not.

We are co-chairing a benefit in New York City on November 3, 2014. The event raises crucial funds for the Rett Syndrome Research Trust (RSRT). While we know everyone cannot attend, we hope you take the time to watch the video and learn more about Maren, Rett and our hope. Any donation of any amount is appreciated, whether it be in dollars, love or prayers. All money raised goes directly to RSRT.

Please help Maren and all the other girls and women suffering from Rett. Please help give them the chance to soar.

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To This Fundraiser

$100

MONEY RAISED
  • Rich & Penny Maun

    $100

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Fundraise for this Campaign

The Team: $6,328 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Lena DeSantis

Amount Raised

$6,228

 

125% Raised of $5,000 Goal

Fundraiser Title

Penny Maun

Amount Raised

$100

Donor Comments

Rich & Penny Maun

Rich & Penny Maun

DONATION: $100

Such a touching video! Happy to help! 3 years ago