Hope for Reign and Drakken
Organized by: Stephanie Harper
Hi, my name is Stephanie and I have two amazing children. Reign who is 11, and Drakken who is 8. I was recently diagnosed with Dercums and ehlers-danlos syndrome. Both are life threatening and extremely painful. Drakken started having symptoms first about 3 years ago then Reign's symptoms started about 1 1/2 years ago. We live in Ohio I had travel to Arizona to get diagnosed because I couldnt get help in Ohio. My doctor in Arizona wants to see the children. And it's very important that they get diagnosed asap so they can start getting help now. Please help me get my kids the medical care they so desperately need. Thank you so much.