Hope for the Harpers
Organized by: Stephanie Harper
Hi my name is Stephanie, I'm a single mother of 2 wonderful children. Reign 10, Drakken 7. I'm trying to raise money to take my children and I to the Unisverity of Arizona. I have been Diagnosed with something called Dercums Disease. Drakken my 7 year old son has been having symptoms of dercums for the last year. Drakken has been to Children's Hospital, Cleveland clinic and countless specialist. With no good results or hope of treatments. My daughter Reign has been having symptoms for the last few months as well. I have been battling this disease since I was about 8 years old. At that time no one knew what it was. I've struggled with this disease for the last 20 years I have at least 100 of these tumors all over my body, every Doctor i went to had no idea what this was or its cause. After countless hospital visits and every specialist I could find I went to the Cleveland Clinic in 2011. I just got Diagnosed about a year and a half ago. But Lipomatotis Dolorosa is extremely rare, painful, & unstudied. No cure has been found, hardly any treatments other than surgery. Unfortunately the Cleveland Clinic has not been able help my son or I. Our last resort is going to the University of Arizona before this progresses to our Brain or Organs which can be deadly and with my son and I not having treatment I fear that this will be the case.I fear I will not be able to help my son, get the treatments I have prayed for since I was his age. I ask of you to help us you have no idea how it much it will change our lives, and with the knowledge the doctors gain help others with this rare disease that Drakken and I are suffering from. I am trying to raise enuff money to not only start our treatment but to get us back and forth for treatments for as long as possible this is a never ending disease and I'm going to do whatever it takes to fight it. Our insurence will not pay for any of our treatments out of the state of Ohio. Drakken is only 7 and I have just turn 29.I want to be around as long as I can for my children I am all that they have.