BENEFITING: HERMANSKY PUDLAK SYNDROME NETWORK INC
Hermansky Pudlak Syndrome (HPS) is a autosomal rare disease in the island of Puerto Rico. This disease affects many parts of the body and many characteristics such as: - platelet defect - albinism - pulmonary fibrosis This disorder and network means the world to me and am asking for donations. We really need to cure this and make this disease known because a lot of people have not heard of this. Let's come together and cure Hermansky Pudlak Syndrome!!!