Hunter's Heroes Fighting Duchenne
Organized by: Friends of Hunter
HUNTER'S HEROES ARE HERE TO FIGHT FOR HUNTER'S LIFE AND FOR HIS FAMILIES WELL BEING, SO THAT THEY CAN FOCUS THEIR ATTENTION ON HIM. MONEY RAISED WILL GO TO MEDICAL/EQUIPMENT/MODIFICATIONS AND MEDICAL TRAVEL EXPENSES AND RESEARCH TO FIND A CURE FOR DUCHENNE!
SHOCK! We were absolutely shocked that our precious Hunter was diagnosed with duchenne muscular dystrophy. No family history, no reason to think something like this would strike our family. But, it has.
Hunter entered this world with big, wide eyes! He has brought us more joy, pride and happiness than we ever imagined was possible. His quick smile, sparkling eyes and belly laugh are times that we treasure with all of our being.
We noticed some quirky mannerisms early, but figured it was no big deal. You know, every child develops differently so we just kept thinking we were paranoid first time parents. Then, he kept missing milestones and at his 6 month check up the doctor ordered some blood work.
SHOCK! The results came back that he had a very elevated CK level and we knew that was not good news. After numerous appointments and insisting that he be tested for muscular dystrophy, our worst fears were confirmed.
We are coming up on 1 year of the "official" diagnosis. Maybe some of the SHOCK has worn off, but the reality of his diagnosis is still very real and hard!
Hunter is the joy of our lives! Right now he is progressing and we are so excited to see him do new things. We really don't have any typical expectations, like most parents, we just celebrate each little and big thing that he does. Although, it is always with mixed emotion, because we know that without a cure or some sort of medical intervention he will lose all that he gains in the years to come.
We are praying for him and for a miracle! We know that God created him, just the way he is supposed to be and we love him just as he is!
Facts about duchenne:
Duchenne slowly robs young men of the use of their muscles,
which can lead to serious medical problems, especially heart
and lung failure.
• Early in life, boys with Duchenne develop more slowly—sitting up,
standing, walking, and talking.
• Boys with Duchenne typically lose their ability to walk between the
ages of 10 and 14.
• By their late teens, young men lose their upper body strength,
including the use of their arms.
• During their teenage years, young men with Duchenne will need a
respirator to help them breathe at night. Eventually, they will need
• Cardiac problems will develop and can start early or during the
• Young men with Duchenne may live into their twenties