BENEFITING: Huntington's Disease Society of America, Inc.
EVENT DATE: Nov 05, 2017
DAYS TO GO: 133
On November 5, 2017 I will run the New York City Marathon. Please join me in raising funds for the Huntington's Disease Society of America, a disease close to my heart. Help me raise $7,500 and I will match every dollar (up to $7,500) for a total donation of $15,000.
Two year's ago my life and my family’s lives changed in just one second of one doctor’s appointment. Christy and I sat in an office at the Stanford Neurology Clinic and listened as her doctor told us that my now estranged wife's genetic testing results confirmed a diagnosis of Huntington’s disease.
Huntington’s disease is a genetic degenerative neurological brain disease. The average life span after the onset of symptoms is 10–20 years. Similar in symptoms to other neurological diseases such as Parkinson’s, Alzheimer’s and ALS, as it progresses it take will take away Christy's ability to walk, talk and reason. And because it is genetic, each of our amazing girls now has a 50/50 chance of inheriting the disease.
Christy's diagnosis began to explain problems that we had been noticing over the past several years. Managing her schedule, depression, memory problems, focusing, reading and understanding directions, and multitasking were becoming more difficult for her. Friends, family and doctors were starting to notice facial twitching and early signs of chorea. Cooking dinner and shopping have become more difficult.
Christy has the phrase “I am Strong” tattooed on the inside of her wrist, and it reminds her every day that she has the strength to navigate the start of this new journey. In 2015 she completed the New York City Marathon. You can read about her inspirational journey here: http://inmenlo.com/2015/11/04/christy-ericson-completes-an-inspirational-new-york-city-marathon-on-nov-1/
And it is not just her journey, but also now our daughters’ journey and mine. There is no cure for this disease. No treatment to slow or stop the progression of it. By bringing awareness to the disease in our community and raising dollars to support the HDSA mission, then we can bring hope for the future to all those affected by HD.
One out of every 10,000 people has HD, and 200,000 people are at risk of developing the disease. The Huntington’s Disease Society of America is dedicated to improving the lives of those affected by HD.
This will be my first and last marathon. I need a new hip and this marathon will serve as the grand finale for the old one. So, don’t worry about me hitting you up for this donation again!
For anyone interested in coming out to NY to meet me at the finish line, I’ll be having a post race cocktail party. Contact me for further details.
**Those who donate $100+ will receive an "I Am Strong" belt buckle
**I will match all donations up to $7,500 for a total donation goal of $15,000