March 14, 2017
BENEFITING: Huntington's Disease Society of America, Inc.
EVENT DATE: Nov 05, 2017
DAYS TO GO: 133
My name is Debbie Zimmermann and my family has been affected by Huntingtons Disease. The gene was passed down to my grandfather and then to my Aunt Norma. She passed away after battling the disease bravely for many years.
I am running the NYC marathon in memory of my grandfather and Aunt Norma and in honor of my family. I am running to raise money and awareness of Huntington's Disease.
Even though HD is a rare disease, our life has intersected with several other families that have the HD gene. I am also running in support of all these familes.
Huntington's disease is an inherited disease that causes the progressive breakdown (degeneration) of nerve cells in the brain. Huntington's disease has a broad impact on a person's functional abilities and usually results in movement, thinking (cognitive) and psychiatric disorders.
Most people with Huntington's disease develop signs and symptoms in their 30s or 40s, but the onset of disease may be earlier or later in life. Earlier onset often results in a somewhat different presentation of symptoms and faster disease progression.
Medications are available to help manage the symptoms of Huntington's disease, but treatments can't prevent the physical, mental and behavioral decline associated with the condition.
All funds raised will help support HDSA's Mission of helping those affected by HD and their families.