the training has started:)
June 18, 2017
BENEFITING: Huntington's Disease Society of America, Inc.
EVENT DATE: Nov 05, 2017
DAYS TO GO: 133
I have Hungtinton's Disease and know I wont be around for ever,I'm 56. My sister Brenda passed away at 50 and my other sister Pam is in assisted living at 58. HD kills your brain cell and your ability to walk, talk, eat and behavior changes.
So I'm going to run the New York marathon this year and raise money and hopefully a lot of awareness for everyone who has never heard of HUNTINGTON'S DISEASE(HD). To be on the HD team I have said I will raise at least $3500. I can't do that on mine own. Please help me:)
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
Hi everyone. Why run the NY Marathon and raise money for HD? Because somehow I still can! Exercising has been shown to help slow the progreeson of HD. I am prove of that!! So That is why i still run, even with the extra falling I do and the aches and pains. It always help me exercise when I have something to train for. I will run the NY marathon with every one of steps thinking about my family and friends fighting to stop HD from taking any one else!
I am running in the NY marathon in November 2017 on the Huntington's Disease Society of America Team. I am so excited!!!
The Huntington's Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families.
HDSA's network of chapters, affiliates, HDSA Centers of Excellence, social workers and support groups provides a seamless connection for help, education and outreach to HD families and health care professionals across the United States.
All funds raised will help support HDSA's Mission of helping those affected by HD and their families.