My name is Melody and I am raising money to support HDSA. My Mother was found to carry the gene about 15 years ago. The disease has slowly diminished her ability to speak, think and take care of herself. It has not, however diminished her spirit as she is surprisingly still walking. I am running because she inspires me everyday with her unfailing determination to live. We have 25 other family members "at risk" and your donation would help us get closer to finding a cure!.
The Huntington's Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families. Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. Please donate so that we can get closer to a cure! And anything you can will help make a difference