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Ben Paul's Fundraiser:

Huntington's Disease Society of America

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Ben's Photo
Ben Paul

THE STORY:

I am reaching out and asking for your support in fighting Huntington’s Disease. And to also show support for one of the greatest guys I know and great friend Arne Ericson, his wife Christy and their three amazing daughters.  Your donations are much needed to fight this disease (AND push me along to train and finish… to put it mildly, running a marathon was not on my bucket list)! Please help me to raise at least $3,500 of which I will be matching $3,500 for a goal of $7,000 to the foundation.    


Please take a minute to read Arne’s story and learn more about Huntington’s:   


Two years ago, my life and my family’s lives changed in just one second of one doctor’s appointment. Christy and I sat in an office at the Stanford Neurology Clinic and listened as her doctor told us that my now estranged wife's genetic testing results confirmed a diagnosis of Huntington’s Disease.    


Huntington’s Disease is a genetic degenerative neurological brain disease. The average life span after the onset of symptoms is 10–20 years. Similar in symptoms to other neurological diseases such as Parkinson’s, Alzheimer’s and ALS, as it progresses it take will take away Christy's ability to walk, talk and reason. And because it is genetic, each of our amazing girls now has a 50/50 chance of inheriting the disease.    


Christy's diagnosis began to explain problems that we had been noticing over the past several years. Managing her schedule, depression, memory problems, focusing, reading and understanding directions, and multitasking were becoming more difficult for her. Friends, family and doctors were starting to notice facial twitching and early signs of chorea. Cooking dinner and shopping had become more difficult.   


Christy has the phrase “I am Strong” tattooed on the inside of her wrist, and it reminds her every day that she has the strength to navigate the start of this new journey.  In 2015, she completed the New York City Marathon. You can read about her inspirational journey here: http://inmenlo.com/2015/11/04/christy-ericson-completes-an-inspirational-new-york-city-marathon-on-nov-1/    


And it is not just her journey, but also now our daughters’ journey and mine. There is no cure for this disease. No treatment to slow or stop the progression of it. By bringing awareness to the disease in our community and raising dollars to support the HDSA mission, we can bring hope for the future to all those affected by HD.    


One out of every 10,000 people has HD and 200,000 people are at risk of developing the disease. The Huntington’s Disease Society of America is dedicated to improving the lives of those affected by HD.   


This will be my first and last marathon.  I need a new hip and this marathon will serve as the grand finale for the old one.  So, don’t worry about me hitting you up for this donation again!   


For anyone interested in coming out to NY to meet me at the finish line, I’ll be having a post-race cocktail party!!  

DONATE

To This Fundraiser

$4,300

MONEY RAISED
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  • Shannon Chircop

     

  • Brian and Andrea Henry

    $100

  • Paul and Cara Magliaro

    $100

  • Tito & Tracy Bianchi

    $50

  • Anonymous

    $3,225

  • PJ and Ashley Honerkamp

    $250

  • Jeff Fisher

    $100

  • Christopher Roeder

    $250

  • Jeremy Gundel

    $200

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123% Raised of $3,500 Goal

Fundraise for this Campaign

The Team: $79,237 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Arne Ericson

Amount Raised

$13,050

 

52% Raised of $25,000 Goal

Fundraiser Title

Gail Shurlow

Amount Raised

$11,529

 

329% Raised of $3,500 Goal

Fundraiser Title

Carl Moe DC

Amount Raised

$6,345

 

63% Raised of $10,000 Goal

Fundraiser Title

Deborah Zimmermann

Amount Raised

$4,345

 

124% Raised of $3,500 Goal

Fundraiser Title

Ben Paul

Amount Raised

$4,300

 

123% Raised of $3,500 Goal

Fundraiser Title

Sydney Green

Amount Raised

$3,611

 

103% Raised of $3,500 Goal

Fundraiser Title

JDCSTRONG James Del Carpio

Amount Raised

$3,525

 

101% Raised of $3,500 Goal

Fundraiser Title

Dawn Pipek Guidone

Amount Raised

$3,432

 

98% Raised of $3,500 Goal

Donor Comments

Jeremy Gundel

Jeremy Gundel

DONATION: $200

3 weeks ago

Christopher Roeder

Christopher Roeder

DONATION: $250

3 weeks ago

Jeff Fisher

Jeff Fisher

DONATION: $100

3 weeks ago

PJ and Ashley Honerkamp

PJ and Ashley Honerkamp

DONATION: $250

3 weeks ago

Anonymous

ANONYMOUS

DONATION: $3,225

3 weeks ago

Tito & Tracy Bianchi

Tito & Tracy Bianchi

DONATION: $50

Stay strong Christy! And good luck Ben and Arne! 3 weeks ago

Paul and Cara Magliaro

Paul and Cara Magliaro

DONATION: $100

3 weeks ago

Brian and Andrea Henry

Brian and Andrea Henry

DONATION: $100

4 weeks ago

Shannon Chircop

Shannon Chircop

Good luck Ben! 4 weeks ago