March 26, 2017
BENEFITING: Huntington's Disease Society of America, Inc.
My name is Gail Shurlow and my family is affected by Huntington’s Disease. The gene was passed down to my husband, Don, who has been battling the disease for the past 7 years. Over the course of his disease, it has gradually become more and more intolerable for Don, and now really has an effect on the way he moves, thinks, and goes about daily life. Don and I have five children who are all at risk of inheriting HD.
Huntington’s Disease is an inherited condition in which nerve cells in the brain breakdown over time. It impacts a person’s movement, thinking (cognitive), and psychiatric abilities. It is most common for those affected to show symptoms in their 30’s and 40’s, but can come at an earlier age, such as Juvenile Huntington’s Disease. There currently is no cure for HD although treatments such as medications, physical and talk therapy are used to help to manage the symptoms. Although, this cannot prevent the physical, mental, and behavioral decline that is caused from HD.
I feel blessed to have this opportunity to have been chosen to run for Huntington’s Disease Society of America in the New York City Marathon. I am running in honor of my husband, our children, extended family, and all other families battling HD.
Huntington's Disease Society of America, Inc. Wrote-
The Huntington's disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s Disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families.
HDSA's network of chapters, affiliates, HDSA Centers of Excellence, social workers and support groups provides a seamless connection for help, education and outreach to HD families and health care professionals across the United States.
All funds raised will help support HDSA's Mission of helping those affected by HD and their families.