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MaryAnn Emerick's Fundraiser:

Huntington's Disease Society of America

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MaryAnn's Photo
MaryAnn's Photo
MaryAnn's Photo
MaryAnn Emerick

THE STORY:

My name is MaryAnn Emerick and HD has always been a part of my life but I had no idea. My grandfather passed away before I was born and my aunt from Juvenile HD. My mom and dad split up when I was two years old, my sister just one. My mom wanted to keep us safe, and away from everyone, she thought she was doing what was best for us but that is where it started. She could not keep a job, was misdiagnosed, we moved more times in a few years than people move in a lifetime, but she always made it fun. My sister and I never knew anything was wrong.  She made sure we knew how much we were loved every day.  As she got worse, physically and mentally, she was finally diagnosed with HD. That day I will never forget, my world stopped, I went from 11 to 30 years old in seconds, little did I know then that HD would impact my life in so many different ways. My mom passed away about 5 years ago. 


A little over 2 years ago I joined the NYA and found a place that I finally felt I belonged. My whole life I felt so alone, no one understood what I was going through, but that all changed when I met other youth affected by HD, that have become part of my family. My passion has become to spread awareness however I can for HD/JHD for my family, my friends, and the entire HD community.


I started working out for the first time ever about 3 years ago.  Over the last year I have had a few injuries, some medical issues that made me not able to run but I was asked if I would run the NYC marathon for HD and to represent the NYA. For those that know me, I can't say no, I actually hate running, but love nothing more than a good challenge.  I would and will do anything I can to help the HD community, spread awareness, and give hope to my family and friends. So this year I am running the NYC Marathon, with the entire HD community in my heart.   I will be representing the NYA, and any youth that is or has been affected by HD. This one is for each of you. 

And lucky me.. I know my biggest cheerleader, my mom will be right by my side the entire way. <3 

Thank you to everyone for all of your support always <3 



More information about the HDSA NYC Marathon Team please read below: Huntington's Disease Society of America, Inc. wrote - Welcome to the 2017 HDSA NYC Marathon Team. Please note that this page is for fundraising purposes only to team members that have already received a marathon spot from HDSA. If you have not yet received a marathon spot from HDSA registering on this page does not guarantee you a spot. If you have questions or concerns about the 2017 HDSA NYC Marathon Team please e-mail Mynelly Perez at mperez@hdsa.org

DONATE

To This Fundraiser

$1,005

MONEY RAISED
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  • Anonymous

    $100

  • Joe C

    $50

  • Eileen Daly

     

  • The Katz Family

    $100

  • Glo xo

    $25

  • McLane Family

    $100

  • Aunt Marianna and Uncle Gaspare

    $100

  • Pam & Dennis Owens

    $100

  • Mary Reid

    $100

  • Trace & Lizzie

     

  • Janine

    $100

  • Amanda Polli

    $50

  • Joan & Ken Pulick

    $50

  • Peter Pizzutiello

    $100

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29% Raised of $3,500 Goal

Fundraise for this Campaign

The Team: $78,087 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Arne Ericson

Amount Raised

$13,050

 

52% Raised of $25,000 Goal

Fundraiser Title

Gail Shurlow

Amount Raised

$11,429

 

327% Raised of $3,500 Goal

Fundraiser Title

Carl Moe DC

Amount Raised

$6,345

 

63% Raised of $10,000 Goal

Fundraiser Title

Deborah Zimmermann

Amount Raised

$4,320

 

123% Raised of $3,500 Goal

Fundraiser Title

Ben Paul

Amount Raised

$4,300

 

123% Raised of $3,500 Goal

Fundraiser Title

JDCSTRONG James Del Carpio

Amount Raised

$3,525

 

101% Raised of $3,500 Goal

Fundraiser Title

Dawn Pipek Guidone

Amount Raised

$3,432

 

98% Raised of $3,500 Goal

Fundraiser Title

Sydney Green

Amount Raised

$3,336

 

95% Raised of $3,500 Goal

Donor Comments

Peter Pizzutiello

Peter Pizzutiello

DONATION: $100

2 weeks ago

Joan & Ken Pulick

Joan & Ken Pulick

DONATION: $50

2 weeks ago

Amanda Polli

Amanda Polli

DONATION: $50

xoxoxox 1 month ago

Janine

Janine

DONATION: $100

1 month ago

Trace & Lizzie

Trace & Lizzie

GO PUP! Kick HD in the A** 1 month ago

Mary Reid

Mary Reid

DONATION: $100

In tribute to Joe Randazzo (hope I have spelled his name right) - a lovely guy 3 months ago

Pam & Dennis Owens

Pam & Dennis Owens

DONATION: $100

Go Maryann!!! Woo Hoo !!!ð?¤? 3 months ago

Aunt Marianna and Uncle Gaspare

Aunt Marianna and Uncle Gaspare

DONATION: $100

In memory of the Randazzo Family and with gratitude to our MaryAnn and all those that carry on the mission. 4 months ago

McLane Family

McLane Family

DONATION: $100

4 months ago

Glo xo

Glo xo

DONATION: $25

4 months ago