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Hyper IgM Foundation's Fundraiser:

Support Idan’s Journey to a Cure by donating to the Hyper IgM Foundation

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BENEFITING: Hyper IgM Foundation

EVENT DATE: Jun 07, 2017

THE STORY:

It has been over four years since our son, Idan, was diagnosed with Hyper IgM Syndrome (HIGM), a rare and life-threatening immune deficiency, and an army of supporters came together to support our family as we headed into a bone marrow transplant to cure our little boy. Two transplants later, and a long journey with many hospital stays, a cure appears to be within our reach. Idan is doing amazing and will be going to kindergarten this fall. In July, we will celebrate not only Idan’s fifth birthday, but also his first Transplant Anniversary, or “Transplantversary” - a great achievement for any transplant patient, but especially for Idan, given the failure of his first transplant. Our journey is not over, but we rejoice and celebrate this milestone and give thanks to all of you who have walked this road with us. So many other children with Hyper IgM have been less fortunate, whether with transplant outcomes, or without having the donor match, to even journey down the road for a cure. The Hyper IgM Foundation, which we founded, is working tirelessly to support these families and to help find a cure for all children and adults living with Hyper IgM Syndrome. 


Last year Idan’s army helped raise over $19,000 in support of the Foundation and the research grants we provide. The Foundation is helping to fund cutting-edge gene editing research that will hopefully provide a safe and long lasting cure for Hyper IgM Syndrome. Today, we ask you to help us bring this future closer and make a donation in honor of Idan’s One Year Transplantversary.


You can donate in three ways: 

* On the Crowdrise campaign page: Here :) 

* On the Facebook Fundraising page

* Directly on the Hyper IgM Website: www.hyperigm.org/donate/ 


Support the cure in other ways: 

Help us spread the word! Pass this email along, or share our Facebook fundraiser. Start a fundraising page through Crowdrise or Facebook and set your own goal in honor of Idan or another HIGM family. 

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More about the Hyper IgM Foundation: The Hyper IgM Foundation aims to improve outcomes and quality of life for Hyper IgM patients and their families through promoting and supporting research, creating and providing educational tools for the patient and physician communities, and creating a community to support Hyper IgM patients and their families as they undergo treatment and cope with this disease. Between Akiva’s extensive experience in public health, Amanda’s legal background in healthcare and nonprofit law, our fellow board member Dr. David Hagin’s cutting-edge research into gene editing for Hyper IgM, and our scientific advisory committee that consists of the foremost experts on Hyper IgM in the world, we are confident that we can make a tremendous impact. 


We hope you can join us again in support of a cause that will impact the lives of many children and adults living with HIGM. Consider a donation today! 


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The Hyper IgM Foundation is a recognized 501(c)(3) charity and all donations are tax deductible. We thank you for your support and invite you to stay up-to-date on the Foundation’s efforts by connecting with us on Facebook by liking the Hyper IgM Foundation Facebook page, www.FB.com/HyperIgMFoundation, and by visiting our website, www.hyperigm.org. As a reminder, the Hyper IgM Foundation is entirely a volunteer run organization. We have no salaries, no rent and limited overhead. This means that 100% of your donation goes to fulfill our mission to improve the treatment, quality of life and the long term outlook for children and adults living with Hyper IGM Syndrome through research, support, education, and advocacy.

$14,247

MONEY RAISED
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  • Liz & Alex Kemeny

    $100

  • Anonymous

    $50

  • Miriam & Elie Levy

    $100

  • NL

    $50

  • TR

    $100

  • Todd M

    $50

  • CC

    $50

  • Julie Fax

    $50

  • Carol

    $50

  • Judy Conley

    $18

  • Nathan Hakimi

     

  • Zack H

     

  • Nidha

     

  • Shuky & Adi

     

  • DS

     

  • DE

     

  • MZ

     

  • MS

     

  • Jennifer Shapiro-Lee

    $100

  • Gloria

     

  • Michelle

     

  • RB

     

  • Sarah Burrell

    $100

  • Noga Malkin

    $50

  • Joanne and Ron Falcon

    $180

  • Judy Tartell

    $100

  • RJ

     

  • MD

     

  • William

     

  • Julie Margulies

     

  • Ava

     

  • David

     

  • Marguerite Anderson

     

  • Tova

     

  • Melissa

     

  • Ronit

     

  • Peter

     

  • Julie

     

  • Tammy

     

  • Josina

     

  • Sharon

     

  • Malya

     

  • Laura

     

  • Rachel

     

  • Akiva Zablocki - In Honor Of Fathers Day

    $180

  • Oran

     

  • Aaron

     

  • Akiva Z.

     

  • Erica

     

  • Tamar

     

  • Baruch

     

  • Emily M

     

  • Helaine

     

  • Christopher

     

  • Joanna

     

  • Esther Fletcher

    $20

  • Daniel Feldman

    $10

  • Anonymous

     

  • Daniel Weininger

    $25

  • Naomi

     

  • Tiffany

     

  • Sue

     

  • Justin

     

  • Meredith

     

  • Nicole

     

  • Sarah

     

  • Todd

     

  • Marcy Fink

     

  • Frayda Dworken

     

  • Donna

     

  • Babette and Michael Basista

     

  • Elizabeth

     

  • Jamie

     

  • Jonathan

     

  • Alexa

     

  • Tangie

     

  • Karina

     

  • Addi

     

  • The Seidman Family Jared, Sheri & Lilli

     

  • Rebecca

     

  • Luke

     

  • Marija

     

  • Stefania

     

  • Rebekah

     

  • Linda

     

  • Gloan

     

  • Adrian

     

  • Adi

     

  • Leah

     

  • Walter

     

  • Blanka Wolfe

    $100

  • Simon

     

  • Alisha

     

  • Luke

     

  • Bernard

     

  • Shifra

     

  • Anonymous

    $167

  • Helen and Tom May

    $100

  • MD

     

  • Lia Mayer-Sommer

    $50

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57% Raised of $25,000 Goal

Fundraise for this Campaign

The Team: $14,247 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Lia Mayer-Sommer

Lia Mayer-Sommer

DONATION: $50

3 weeks ago

MD

MD

1 month ago

Helen and Tom May

Helen and Tom May

DONATION: $100

In honor of Idan's 5th birthday! 1 month ago

Anonymous

ANONYMOUS

DONATION: $167

My love to you Idan 2 months ago

Shifra

Shifra

3 months ago

Luke

Luke

3 months ago

Alisha

Alisha

3 months ago

Simon

Simon

3 months ago

Bernard

Bernard

3 months ago

Blanka Wolfe

Blanka Wolfe

DONATION: $100

3 months ago