BENEFITING: Immune Deficiency Foundation
EVENT: Rare Experience Walk
EVENT DATE: Jun 11, 2016
Primary immunodeficiency diseases (PI) are a group of more than 250 rare, chronic disorders in which part of the body’s immune system is missing or functions improperly. Because one of the most important functions of the normal immune system is to protect us against infection, patients with PI commonly have an increased vulnerability to infections, which can be recurrent, unusually severe, or won’t clear up. People with PI can face frequent health problems and often develop serious and debilitating illnesses.
While not contagious, these diseases are caused by hereditary or genetic defects, and although some disorders present at birth or in early childhood, the disorders can affect anyone, regardless of age or gender. Some affect a single part of the immune system; others may affect one or more components of the system. And while the diseases may differ, they all share one common feature: each results from a defect in one of the functions of the body’s normal immune system.
Years ago, a diagnosis of a PI meant extremely compromised lives, not just for the patients but for their families as well. Today, with early diagnosis and appropriate therapies, many patients diagnosed with a PI can live healthy, productive lives.
The Immune Deficiency Foundation (IDF), founded in 1980, is the national non-profit patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with PI through advocacy, education and research. There are approximately 250,000 people who are diagnosed with PI in the U.S., and thousands more go undetected.
Thousands of individuals and families affected by PI depend on IDF for advocacy, education and empowerment.
IDF does not charge patients or healthcare professionals for the educational materials or local programming that it provides. This is possible because of the generosity of the donors and sponsors who make unrestricted gifts to IDF.
Your gift to IDF will help provide vital resources to the PI community.