A little over four years ago I was blessed with the opportunity to become a father of a baby boy. I can remember it like ot was yesteday in the hspital room when I first heard his cry and watched the nurses and doctors tend to him. I carried him to the warming table and noticed that things were not quite what you would expect when you have a baby. He had some missing bone structure and my heart dropped into the pit of my stomach. But like any parent I immediately thrust myself into action and began to ask questions and asked the doctors what was happening and they immediately started ruling out possibilities. I can remember holding and saying Daddy is here son and I will be here to tend to your every need. I love you. His mother and I sat through a tough week of testing as he was also born underweight with low blood sugar as well. So as you can imagine it was quite an emotional roller coaster. The doctors ran every test possible to figure out what the issue was and finally we were told that he had some possible genetic defects. I didn't know what to think or say to his mother as were both equally afraid. We finally started to see some specialist and they determined that he would have some delays both cognitively and physically he would developed later than those children in his age group. Today he has vastly improved and continues to grow in so many ways would not be possible without the help of family and great resources. In so many areas children that have developmental delays have needs but their parents don't have to financial resources to get the the necessary help to be successful so I wanted to start this private fund to provide additional support to 10 families each year that are working to overcome the obstacles they face in having children with these genetic alterations or genes passed on from patents that cause delays that need professional support and services.