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JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Fundraiser:

I'm turning 40 and want to see my nephew turn 40 too.

JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo
JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo
JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo
JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo
JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo
JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo
JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo

BENEFITING: JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN

EVENT DATE: May 01, 2015

THE STORY:

I'm turning 40 on May 1st! I'm thrilled and very thankful to be here. The world is my oyster and I have taken advantage of every opportunity placed in my path. Everyone should have the same chance.

I'm dedicating this milestone Birthday to my nephew Jonah.

Jonah suffers from an ultra ultra rare genetic disease, Sanfilippo Syndrome type C. Jonah is my hero: he lives life one day at a time and parties harder then anyone I know (it runs in the family). Jonah deserves a chance at life. It's with a heavy heart that I say, that Jonah needs help in fighting his fate.

Sanfilippo is FATAL. Without a treatment, in a few precious years Jonah will lose all the skills that he has learned. He will be trapped in his own body, not able to talk, walk, or eat on his own, profound brain damage will overcome him.

I have expensive tastes so donate accordingly. Help me save Jonah. A treatment is within our reach!!!!! It's up to us to make it happen. http://jonahsjustbegun.org/

DONATE

To This Fundraiser

$730

MONEY RAISED
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  • Jill, Jeremy and Jonah

    $100

  • Jan & Peter Weishaar

    $40

  • The Kirkhams

    $40

  • Michael Quercia

     

  • Anonymous

    $100

  • Gay Watmore

    $25

  • JCW

    $400

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37% Raised of $2,000 Goal

Donor Comments

JCW

JCW

DONATION: $400

3 years ago

Gay Watmore

Gay Watmore

DONATION: $25

You are an Amazing Aunt! 3 years ago

Anonymous

ANONYMOUS

DONATION: $100

Jennifer Wood you are one great Aunt! Happy 40th Birthday. 3 years ago

Michael Quercia

Michael Quercia

Happy birthday beautiful! 3 years ago

The Kirkhams

The Kirkhams

DONATION: $40

3 years ago

Jan & Peter Weishaar

Jan & Peter Weishaar

DONATION: $40

Jill's little sister is turning 40?!!? Happy Birthday...and may all your birthday wishes come true! 3 years ago

Jill, Jeremy and Jonah

Jill, Jeremy and Jonah

DONATION: $100

Have a wonderful 40th! 3 years ago