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SHARKTANK RESEARCH FOUNDATION's Fundraiser:

Indrepta: A Cystic Fibrosis Supplement

SHARKTANK RESEARCH FOUNDATION's Photo
 

Production update
August 30, 2016

We have had a delay in acquiring one of the ingredients, so the best estimate I can make now when the product will be available is most likely  See more

THE STORY:

Sharktank Research Foundation is a 501c3 non-profit organization formed in 1998 and dedicated to cystic fibrosis (CF) research. Sharktank promotes patient-driven initiatives that are accessible, affordable and support the well-being of all cystic fibrosis patients.

The CF community is active and tightly linked, and therefore ideal to lead a new public health movement with significant patient involvement. Sharktank is rapidly crowdfunding and crowd-developing natural therapies for CF by using the CF community’s dedication and collective buying power, and by sharing outcomes to find what works best.

Sharktank’s flagship project is to create the first effective and affordable crowdfunded and crowd-developed nutraceutical supplement therapy to help CF patients manage their health more naturally. We are using multiple GRAS (Generally Recognized As Safe) ingredients that are freely available to anyone for use in food and dietary supplements. After extensive research by our affiliated scientists and by cystic fibrosis patients, this natural supplement—called Indrepta—will be released in the next few months.

Although we cannot make specific medical claims, Indrepta contains ingredients demonstrated to correct and/or potentiate the defective cystic fibrosis protein (CFTR). Correctors help CFTR move to the right place in the cell, and potentiators help the CFTR proteins function better once they are properly located.

Unfortunately, cystic fibrosis patients who live in countries with health services that do not cover the more expensive CF drugs are left behind. Thus far, new pharmaceutical drugs have worked well for only a small percentage of CF mutations, and clinical trials to develop treatments for less common CF mutations are not cost effective for pharmaceutical companies. But, by working together, we can develop and test natural therapies right now for patients in the U.S. and worldwide.

Pharmaceutical drug correctors and potentiators of CFTR are among the most expensive drugs in history, and may have side effects. In contrast, the ingredients in Indrepta are time-tested for safety, and the cost of Indrepta will be comparable to other natural supplements. Our shared buying power makes highest quality ingredients affordable.

Different CF mutations may require varied combinations and amounts of ingredients to restore maximum CFTR function. With the participation and feedback of CF patients in this project, we can refine the supplement composition to the genetic profile of the patient.

Our second project will be a home test kit that allows patients to measure changes in their own CFTR function in response to dietary changes and drug treatments. This test will allow truly individualized treatment of CF.

We are hoping for your help and participation in these projects. For each $50 tax-deductible contribution to our non-profit, we will send you a one month’s supply bottle of Indrepta as soon as it becomes available. Initially we can manufacture Indrepta in 1000 unit orders. Donations will help cover costs of manufacturing and ongoing research to improve the product by mutation based on feedback we receive through existing and new social media infrastructure. Your involvement will make all the difference!

$8,225

MONEY RAISED
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  • Anonymous

    $500

  • Jim Caldwell

    $50

  • Mary McNichols

    $50

  • Margie Levy

    $500

  • Patricia Borro

    $50

  • Jei Roberts

    $50

  • Aimee Kravette

    $25

  • Simone Lennen

    $50

  • Alan Himmel

    $50

  • Aidan Keyes

    $100

  • Caryn & Robert

    $100

  • David Clark

    $50

  • Jennie, Matt and boys

     

  • Anonymous

    $50

  • Fergal Keyes

    $100

  • Elizabeth Gallo

    $100

  • KJG

    $2,500

  • Enrico Lister

    $50

  • Gabriella Pansini

    $50

  • Bubbie Didi

    $100

  • Beau Means Business Foundation

    $1,000

  • Anonymous

    $100

  • Amber Wallace

    $25

  • Billyray

    $100

  • Richard

    $100

  • Hervé Jacqueson

    $50

  • Redwin Wakefield

    $50

  • Gramma

    $250

  • LaJean Burns

    $50

  • Cathy O.

    $50

  • Tabby Caldwell

    $50

  • Jeanne Barnett

    $500

  • Haley Graham

    $50

  • Steven Miller

    $50

  • Wes Houser

    $500

  • Diana Blue

    $50

  • patrizia ruffini

    $50

  • guido celli

    $50

  • Anonymous

     

  • Nick Landt

    $50

  • Lena Winroth

    $50

  • Heffbelly

    $25

  • Nicholas Landt

    $50

  • Anonymous

    $100

  • Nicholas Landt

    $50

  • Nicholas Landt

    $100

  • Nicholas Landt

    $100

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27% Raised of $30,000 Goal

Fundraise for this Campaign

The Team: $8,225 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

SHARKTANK RESEARCH FOUNDATION

Amount Raised

$7,275

 

24% Raised of $30,000 Goal

Fundraiser Title

Margie Levy

Amount Raised

$775

 

31% Raised of $2,500 Goal

Fundraiser Title

Patricia Borro

Amount Raised

$50

Fundraiser Title

Richard Gamba

Amount Raised

$50

Fundraiser Title

Hervé Jacqueson

Amount Raised

$50

Fundraiser Title

Aimee Kravette

Amount Raised

$25

Fundraiser Title

Aidan Keyes

Amount Raised

$0

 

0% Raised of $1,000 Goal

Donor Comments

Nicholas Landt

Nicholas Landt

DONATION: $100

1 year ago

Nicholas Landt

Nicholas Landt

DONATION: $100

1 year ago

Nicholas Landt

Nicholas Landt

DONATION: $50

2 years ago

Anonymous

ANONYMOUS

DONATION: $100

Patient 2 years ago

Nicholas Landt

Nicholas Landt

DONATION: $50

2 years ago

Heffbelly

Heffbelly

DONATION: $25

2 years ago

Lena Winroth

Lena Winroth

DONATION: $50

2 years ago

Nick Landt

Nick Landt

DONATION: $50

2 years ago

Anonymous

ANONYMOUS

2 years ago

guido celli

guido celli

DONATION: $50

2 years ago