Spring Clean Update
April 30, 2016
Our daughter Iris was diagnosed with Juvenile GM1 Gangliosidosis when she was five and half. This is a horrible degenerative neurological disease and everyday we worry about her future. Without treatment, she will face many, many challenges and a very extreme degeneration of every bodily function required to live. Seizures will arrive. She will lose the ability to walk, eat, and speak. We are so very extremely thankful to all those who support our mission to help our daughter and all those affected by this horrible condition. This is just one fundraiser of many. We owe it to all the children affected by this devastating condition to help them. It's simply too much to bear to know that there is research available NOW that could save their lives. Please help contribute to our URGENT mission to help save Iris and all those affected by this condition.