BENEFITING: Brain Tumor Society
ORGANIZER: THE IRONMAN FOUNDATION
I'm racing for a kid named Connor -- a little guy who had a big bad brain tumor. A little over a year ago, when Connor was just 21 months old he was diagnosed with an extremely rare brain cancer. He then underwent a 7-hour brain tumor re-sectioning surgery at Hasbro Childrens Hospital in Providence, RI. His amazing neurosurgeon was able to remove all but a small inoperable portion of the racquet ball-sized tumor and Connor was enrolled in special clinical trial to treat this aggressive cancer, which was known to be a virtual death sentence. Despite facing many challenges, Connor continues to be a happy little guy, who exhibits the bravery and never-give-up attitude that earned him the Honey Badger nickname.
Last year I raced Ironman Lake Placid. I wasn't counting, but it took me 14 hour 39 minutes and 54 seconds. During that time, I thought about a lot of things. One of those thoughts was about how fortunate I was for my family. I also thought about Connor and how hard he has fought and about his parents.
I'm heading back to Lake Placid this year to race again, and for some reason I'm compelled to do more than train, race, and think. So, I joined with the Ironman Foundation and committed to raise money for the Brain Tumor Society. By doing this I hope to honor the Connor's incredible courage and to help people who are fighting to survive a brain tumor.
Today, nearly 700,000 Americans are living with a primary brain tumor, and 69,000 more will be diagnosed this year. With no available cure and limited treatment options, brain tumors dramatically impact the quality of life for all those affected. The National Brain Tumor Society’s strategic initiatives and funded programs aim to improve an understanding of all brain tumors to transform research into new and effective treatments, as quickly as possible. To achieve these goals, they foster collaboration and improvements within all facets of the drug discovery and development landscape including the private sector, government, and academia; and invest wisely in key research poised to deliver results. They are the largest nonprofit dedicated to the brain tumor community in the United States, and they say that they won't rest until a cure exists.
My fundraising goal is to raise $10 for each mile. I have paid for the race and the hotel, so this is not a fundraiser to off set my expenses. Its just to help people like the Connor who are racing a very different kind of Ironman.