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Jeff Alves' Fundraiser:

2015 Ironman Lake Tahoe

Jeff's Photo
Jeff's Photo
Jeff's Photo

BENEFITING: National MPS Society

ORGANIZER: THE IRONMAN FOUNDATION

EVENT: YOUR JOURNEY, YOUR CAUSE

Jeff Alves

THE STORY:

While doing Ironman Arizona in 2013, I had the privilege of raising awareness and funds for a rare hereditary disorder known as MPS.  Once again, through the Ironman Foundation/Crowdrise, I have the good fortune of being able to further support the National MPS Society and those who have been afflicted by this disease.

I had never heard of MPS until mid 2013 when a fellow co-worker told me he lost two siblings to the disease.  MPS — short for mucopolysaccharidoses — is actually a group of disorders, all of which are characterized by the body’s inability to produce specific enzymes. The lack of these enzymes prevents the body from breaking down sugar carbohydrate chains, resulting in excess storage of materials in virtually every cell of the body. The effects are devastating, resulting in mental retardation, shortened stature, vision and hearing problems, lifelong pain, heart disease and other chronic conditions. Most people with MPS don’t live past their late teens or early twenties.

Just one in 25,000 people are born with MPS. One of them is Anni Motsinger, a 7 year-old girl who was diagnosed with a form of the disorder called Sanfillipo syndrome in 2011. Rare diseases like these get scant research funding. We need increase awareness and support for research in order to improve Anni’s hope for a better quality of life and a longer future.  Please check out the donation page and make a donation. The following is a quote from Anni’s mom Morgan, “I'm asking that you donate $11.14. Why the weird amount? Anni was diagnosed on 11/14, so I'm claiming those numbers for something awesome! Jeff is doing the Ironman competition in September and proceeds of his fundraising efforts go to the MPS Society to help further research and support for MPS families. If you can donate more, please do”.

Ironman Lake Tahoe 2015 is on Sept. 20. My training is already in full swing and I invite your support of the MPS Society.  Any amount is appreciated. Thank you for your time and generosity to bring hope to the children & families afflicted with MPS.

I choose to train and compete.  The families with MPS did not choose their circumstances, but their determination and perseverance to face the daily challenges of MPS is truly inspiring.

To find out more about MPS, copy and paste the following link in your browser.  

http://mpssociety.org/

Additionally, the following is a link to the story of Anni Motsinger and her family who have been affected by MPS.  Please copy and paste link in your browser for more information about their story.

http://morganmotz.blogspot.com/p/annis-mps-journey.html

Thank you for your consideration in making a donation to help further research and awareness of this rare disease.

$5,139

MONEY RAISED
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  • Anonymous

    $25

  • The Parmleys

    $11.14

  • Ryan & Freynie Lancaster

    $11.14

  • Logan and Peyton Motsinger

    $11.14

  • Gma & Gpa M

    $33.42

  • Grandpa John

    $11.14

  • Brittany, Joe, Landon, Jolene and Avery

    $11.14

  • Julie JOY

    $11.14

  • Lyn Johns

    $25

  • Helen H

    $200

  • Mis CS

    $11.14

  • Liberty Elementary Coin Drive

    $112.63

  • Linda Bardet

    $50

  • Anonymous

    $25

  • Fire Fighters

    $111.14

  • Fire Fighters

    $111.14

  • David, Lyndi, and Aliece Schieldt

    $50

  • Nicki and David Hugie Terry

     

  • Anonymous

    $100

  • Garrison Carter

    $50

  • Ursula

    $11.14

  • Raymond & Pamela Allen

    $12

  • Larry

    $11.14

  • Michael Clemons

    $22.28

  • Quyet & Helen

    $150

  • Linda Vollenhals

    $100

  • Dawn Jump- State Farm Insurance

    $50

  • Mike Cochran

    $100

  • Aidan Bach

    $50

  • Hadi Ty & Sandra Kharazi

    $500

  • Anonymous

    $100

  • The Hall Family

    $25

  • Mel Rapton Honda

    $211

  • Joefish Guide Service

    $100

  • Judi Powell

    $50

  • Jean Luchini

    $100

  • Colleen Rocha

     

  • Lowell and Carol Carlson

    $25

  • The Thornton Family

    $50

  • Matt Kopa

     

  • Jeff & Kyoko

    $100

  • Don & Donna Wood

    $50

  • Kim & Butch Moors

    $50

  • Greg Alves

    $50

  • Margaret Jordan

    $140

  • Lauren Bruene

    $120

  • Robyn Lampa

    $100

  • Richard Sutton

    $100

  • Stacie Zuercher

    $25

  • Mark McRae

    $100

  • Cheryl Hurliman

    $50

  • Dennis Criss

    $125

  • Ruby Fry-Matson

    $25

  • Dan Mason

    $20

  • Don Margeson

    $500

  • Morgan Motsinger

    $316

  • Andrew Pongyan

     

  • Mark Lewis' family

    $200

  • Blake Tonda

    $65

  • Dave & Stella Hoskins

     

  • John & Anna

    $50

  • Judy and Al Parsons

    $25

  • Jeff & Marcy Bradshaw

    $50

  • Anonymous

     

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51% Raised of $10,000 Goal

Fundraise for this Campaign

The Team: $29,006 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Brian Lungren

Amount Raised

$19,015

 

76% Raised of $25,000 Goal

Fundraiser Title

Jeff Alves

Amount Raised

$5,139

 

51% Raised of $10,000 Goal

Fundraiser Title

Paul Vosti

Amount Raised

$3,766

 

75% Raised of $5,000 Goal

Fundraiser Title

Stephanie Moore

Amount Raised

$985

 

70% Raised of $1,406 Goal

Fundraiser Title

Timothy Leung

Amount Raised

$100

Fundraiser Title

THE IRONMAN FOUNDATION

Amount Raised

$0

Donor Comments

Anonymous

ANONYMOUS

2 years ago

Jeff & Marcy Bradshaw

Jeff & Marcy Bradshaw

DONATION: $50

2 years ago

Judy and Al Parsons

Judy and Al Parsons

DONATION: $25

2 years ago

John & Anna

John & Anna

DONATION: $50

For Anni! 2 years ago

Dave & Stella Hoskins

Dave & Stella Hoskins

Don't let your meat loaf 2 years ago

Blake Tonda

Blake Tonda

DONATION: $65

2 years ago

Mark Lewis' family

Mark Lewis' family

DONATION: $200

2 years ago

Andrew Pongyan

Andrew Pongyan

2 years ago

Don Margeson

Don Margeson

DONATION: $500

2 years ago

Morgan Motsinger

Morgan Motsinger

DONATION: $316

2 years ago