September 21, 2017
BENEFITING: Peter Norman on behalf of Akron Children's Hospital Foundation
ORGANIZER: THE IRONMAN FOUNDATION
EVENT: Your Journey Your Cause 2017
I'm racing on behalf of my nephew Peter Norman to rasie money for Akron Chiuldren's Hospital Foundation. Peter wishes to help this foundation to better serve children diagnosed wiht Ulcerative Colitis.
Peter Norman was diagnosed at age 11 with Ulcerative Colitis. When what started out as a bad case of diarrhea did not subside but became alarmingly worse, his parents, Chris and Kathleen, took him to the Pediatrician for tests. Viruses and bacterial infections were ruled out as Peter lost 13 pound in one week. He was unable to hold onto any food he ingested. They quickly met with a gastroenterologist at Akron Children’s Hospital, who scheduled a colonoscopy and endoscopy the following week. Peter was pale and weak. Though obviously in great pain, Peter never complained about it. Still his symptoms worsened. Finally, his surgery day arrived and he went into be scoped. The doctor came back an hour later and met with Kathleen and Chris. He showed them pictures of Peter’s colon, almost completely covered in bleeding ulcers. Diagnosis – a severe case of Ulcerative Colitis. They had to decide on a treatment plan about a chronic disease they knew little about in 10 minutes’ time. Peter was swiftly admitted to the hospital and the doctors started the steroid prednisone, and eventually moved Peter on a treatment of a Remicade infusion a week later - - and scheduled infusions every 8 weeks paired with Methotrexate every week just to keep his symptoms at bay. The Remicade infusions kept Peter active and able to enjoy life. He went back to his normal schedule of boy scouts, basketball, band and baseball. And then an unpredictable flare occurred. The ulcers had come back and put Peter into the hospital again, not quite one year after his initial diagnosis. The whole family rang in 2016 in Peter’s hospital room. Two weeks later he was released with a daily dose of prednisone to keep his ulcers at bay, and he began to attend school again. Peter actually earned straight A’s that quarter at school, in spite of all of his time out of the classroom. Two months later, after extensive testing, Peter was able to resume his Remicade treatments once again, now at every 6 weeks. The infusions afford Peter the opportunity to enjoy life as the active 13 year old he is now: Boy Scout, euphonium player in the band, first baseman/pitcher, and wrestler. When Tim approached Peter about raising money for a cause related to Ulcerative Colitis, Peter immediately thought of the infusion center at Akron Children’s Hospital. It provides for the medical needs not only for patients like Peter, but also kids who need chemotherapy, infliximab, blood products, IV gammaglobulin, and antibiotics. Funds raised will support the homelike setting in which the staff provide necessary care for chronically ill kids. Peter would like to thank his Uncle Tim for raising funds to help the center and to shine light on Ulcerative Colitis.