2 Days Away!!!!
March 23, 2017
BENEFITING: National Fragile X Foundation
EVENT DATE: Mar 25, 2017
My Nephew Jack was diagnosed with Fragile X three years ago. Fragile X Syndrome (FXS), is a genetic syndrome. Nearly half of all children with Fragile X Syndrome meet the criteria for a diagnosis of autism. FXS is an inherited cause of intellectual disability especially among boys. It results in a spectrum of intellectual disabilities ranging from mild to severe. As Fragile X is relatively unknown we are raising money to enhance awareness and research. Many of the tests to confirm the diagnosis are extremely expensive and doctors rarely find them necessary. Because of this many children go undiagnosed and do not receive the treatment necessary to help them develop. Please join me in raising awareness in Fragile X