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Jacqueline Gregor's Fundraiser:

Team Jacquie

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Jacqueline's Photo
Jacqueline Gregor

THE STORY:

My name is Jacquie Gregor I am 50 years old and diagnosed with A.S. in 2007.  Let me begin with my life before the diagnosis.  I was a ‘beauty pageant contestant’ and model in my teens, a mother at the age of 20, a mountain hiker, a fitness coach,  all of this with a goal to hike the Grand Canyon on my 50th birthday.  The picture of me on the mountain (sitting down) is one of the last times I was able to climb that summit(Not the Grand Canyon).  That is a special place, it is where my Husband proposed to me 12 years ago.  He said “look down this mountain and see all we have gone through to get here”.  I now look at it from below and see how much more courage I need to live my life each and every day!

I now begin my story living with A.S.

This Diagnosis came after many years of neck pain and debilitating migraines.  I even worked for a Chiropractor to be able to afford constant adjustments and therapies.  I remember seeing my breast bone and ribs turn purple about 15 years ago, I laughed and said  to myself how special I am to have purple joints, after all this is my favorite color.   Well… the purple areas began to appear more and more with increasing pain. I was married to my friend and soul mate in May, 2000.  Upon returning from our honeymoon I became VERY ill.  I could not walk even 2 feet without collapsing.  My oxygen saturation level droped to 77.  The doctor told my Husband “get your affairs in order, she needs a heart lung transplant, NOW!” This began what we now know as my A.S. journey.  I recovered from breathing issues, with the use of a rescue inhaller and a bronical dialator, I could breathe again, or so I thought!

My body became weaker and my perreferal joints continued to hurt every day.  My Mother became ill and needed in home care that became a long hospice care period.

While taking care of Mom and  with the stress and little sleep the pain never went away. I noticed a large lump on my sternocavicular joint, it worried Mom and made her ‘comfort care’ more difficult, I laughed and told her it was a backward ‘Quasi Modo’ bump.  This took some of the urgency away in her mind.  My Mom died in 2005, before she died I promised her to have my ‘Quasi’ bump ‘looked at’.  I received so many diagnosis ranging from ‘possible cancer’ to ‘being all in my head’.  Durring this time I continued to have chronic Iritis issues.  I was refered to an Opthamologist, he told me “you have to have an autoimmune disease, it will manifest eventually”.  In 2006 I saw a new Chirpopractor, he manually adjusted my neck and broke off a piece of “calcificated bone”.  This gave way to awful pain, the only relief I got was when I put my arm over my head.  I went to Urgent care where they refered me to a Rhumetologist.  I was at the end of my pain tollerance (so I thought, there have been worse times since), I made an appointment.  After months of medical tests and treatments it was confirmed I have “A - Typical Ankylosing Spondylitis”(I do not test positive).  What?  I was in denial, I didn’t research the disease or talk about it. The less I knew the better I could beat this thing!  This cannot be happening, I want to hike the Grand Canyon!

 I began a treatment of Humeria, Methotrexate, Meloxicam, Folic Acid and a pain relief medication.  The Humeria gave me more migraines and encephalitis, we discontinued the Humeria and tried Enbrel.

With the Enbrel my symptoms became worse.  Finally, a “new” TNF blocker was introduced and I am now on all of the other listed medications including Simponi.  I thought this was my answer, until March 2011 when I fractured my fibula bone due to tendons being wrapped around the ankle.  I had surgery and several months of casts and treatment.  NO I did not get to hike the Grand Canyon with my Husband for my 50th birthday.  Instead I had a party to raise money and awareness for A.S. I began researching A.S. and I accept that I am one of the faces with this awful disease.  I became a support group leader in Tucson, Arizona in December of 2011.  I appreciate the S.A.A. and all they do to help us and the communites to become aware of this terrible disease.

I am not easily defeated, I WILL continue my fight to live a good and happy life in spite of this disease and to help others in their fight to understand and live with this awful disease.

 

 

DONATE

To This Fundraiser

$220

MONEY RAISED
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  • Cheryl Rosano

    $50

  • Anonymous

    $25

  • Darla Robenolt

    $50

  • Melissa Mathieson

    $10

  • Anonymous

    $10

  • Kristi Brandt

    $25

  • Judy Helzel

    $25

  • Linda Leighton

    $25

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Fundraise for this Campaign

The Team: $220 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Jacqueline Gregor

Amount Raised

$220

Fundraiser Title

Cynthia Feig

Amount Raised

$0

Donor Comments

Linda Leighton

Linda Leighton

DONATION: $25

In tribute/honor of Jacquie 6 years ago

Judy Helzel

Judy Helzel

DONATION: $25

6 years ago

Kristi Brandt

Kristi Brandt

DONATION: $25

6 years ago

Anonymous

ANONYMOUS

DONATION: $10

6 years ago

Melissa Mathieson

Melissa Mathieson

DONATION: $10

Jacquie~ I too have AS. I'll share with you my newest favorite quote because I bet it describes you well.... "Be willing to use your voice in service to your soul. Go on. Rock that damn boat. The wave you create might just change the world…” Best wishes for a successful fundraiser for this life-altering disease! 6 years ago

Darla Robenolt

Darla Robenolt

DONATION: $50

In support of the on-going research to help people like my sister Jacquie who suffer from the life-altering affliction of AS. 6 years ago

Anonymous

ANONYMOUS

DONATION: $25

6 years ago

Cheryl Rosano

Cheryl Rosano

DONATION: $50

Tribute to Jacquie 6 years ago