Skip to content

JACQUI'S LEUKEMIA BATTLE

Organized by: Brien Krawitz

Brien's Photo
Brien's Photo
Brien's Photo
Brien's Photo
Brien's Photo
Brien's Photo
Brien's Photo
 

Follow Jacqui's Journey
June 16, 2016

Donors and potential donors can track Jacq's journey at the following link.  It is updated daily for the most part. https://www.caringbridge.org/visit/jacquelinegregory/mystory See More

THE STORY:

This campaign is one of hope and determination. My very dear friend Jacqui was diagnosed with AML Leukemia on July 25, 2013 during what was supposed to be a routine visit to the hospital for some unexplained facial swelling. Her and her family assumed she was having some type of reaction, possibly allergic reaction to something. To their dismay she was diagnosed with AML (Acute Myeloid Leukemia). She was diagnosed at the time with an extremely high white blood cell count, and was flown by helicopter to The Hospital at the University of Pennsylvania. Since that time, she has been through 2 bone marrow transplants, countless blood transfusions, countless spinal taps, and more medical procedures than any one person should have to endure. Mind you, Jacqui is only in her late 20's. I met her almost 1 year after her initial diagnosis, and at the time she was on many medical restrictions in terms of where she could go, and what she could eat or drink. Her immune system was very compromised, and she was at very high risk for either bacterial infection, or any type of sickness that her body couldn't fend off. Fast forward two years, and her condition has fluctuated from really bad to pretty good and back again. She was recently in the hospital again for a relapse of her Leukemia. At the time, about 3 months ago, Jacqui was diagnosed as having cancer cells in her spinal fluid and the nerves of her eye. It became such a pressing issue that the University of Pennsylvania Hospital made special arrangements to open their entire radiation center on a weekend, specifically to do immediate radiation due to the swelling in her eye, and the massive headache associated with it. After a week or so, her family was advised she was in much better health, and looked to be coming out the other side in better condition. She was deemed ok to go home and be seen as an outpatient. However, as Leukemia, and many other blood cancers go, the good times didn't last very long at all. She has been in and out of the hospital since this past bout with her eye and spinal fluid, but has recently relapsed, and taken a turn for the worse. She is now is showing a mutation of the FLT3 gene, which generally doesn't have a very good prognosis, and in many cases can cause death. My best understanding of it is that it is basically like supercharging cancer. The way I understand it, the FLT3 acts a conductor for cancer growth. It was determined about a week ago that her doctors at the University of Pennsylvania, some of the best in the country could no longer come up with adequate treatment to save her. After careful consideration, it was decided by her, her family, and her doctors that her best, and perhaps only, chance of survival was to get her immediately into a trial study of a new treatment that has shown some promise in regards to killing the FLT3 mutation. At this time, her doctors feel it is her only hope of survival. The only place in the country able to place her in the study was MD Anderson Cancer Center in Houston, TX. Her doctors here in Philadelphia feared that they wouldn't be able to keep her healthy or stable enough for the approximately four weeks it would take to get her in the study here at home. They gave her several blood and platelet transfusions to stabilize her condition, and she was flown to MD Anderson in Houston this past Thursday. Now, enough about the specifics. She is a very dear friend to me, and I have seen her through good and bad times. I can tell you that before last Sunday, I have never seen a crack in the armor. I have never seen her cry, never heard her complain, and never saw any fear in her. She is much stronger than most of us. However, in a private moment at her hospital bedside on Sunday afternoon, she cried and expressed concerns that she may not make it through this, and specifically said I still owed her a trip to New York City, and that she wanted to make that happen, and also that her only wish was not to die in a hospital. It seems very strange to ask for money for a sick person becuase money should be the last problem they worry about, but this case may or may not be different from others. Her Mother, a Nurse by trade, has been forced to quit her job to be at Jacqueline's side throughout this ordeal. Her Father is a hard worker, but it has really been on him to take care of the family, and keep things running at home. In my estimation, both her Mother and Father have done everything you could ask of a parent in this situation. This leads me to the reason for this campaign. Like everyone else, I hope for a miracle, and hope Jacqui beats this and comes out the other end healthier and happy, and able to live a full life. As a realist, sometimes I find that hard to fathom. The end result isn't what matters, it the journey there that does at this point. Whether my friend lives or dies is out of my control, but my hope is to make sure the journey is a comfortable one either way. I know that she has racked up some tremendous medcial bills, to the extent that she still, to this day worries about not being able to go back to work at Rite-Aid Pharmacy. See, that is Jacqui. She is hard working, dedicated, and caring. I don't nor does her family have the resources to put her mind at ease, something she really needs at this time. I would like to tell you specifically what the plan for the money is. First and foremost, it is to put her family a little at ease, and to make it possible for her Father to travel to Houston to be with his daughter instead of worrying about the burden of having to make sure he's earning enough to keep the family afloat. The second, more important thing is this. I know Jacqui's family has become all about Cancer outreach and support programs. I have been to Cancer walks with them where they are amongst others who are sharing their stories of triumph and tragedy. I know that Jacqui has a "bucket list". I don't know exactly what is on it, but I know there really aren't any resources available to make them happen at this time. I don't have a crystal ball to know whether she will pull through this or not. If she isn't going to make it, I would love my last gift to her and her family to be the ability to fulfill some of those last requests and dreams, and not have a lack of money be the reason they are not fulfilled. If this campaign is successful, it is my hope to be able to make her last wishes happen if need be, and if she makes it, to be able to give her the money to put her mind at ease while she recovers and continues the long battle ahead. Should she not make it, any and all remaining proceeds would be split 50/50 between The Hospital at the University of Pennsylvania's Abramson Cancer Center, and MD Anderson Cancer Center in Houston. The only caveat to that would be if her parents chose to start a foundation in her name, then 50% of the remaining money would go to the hospitals, split 50/50, and the remaing 50% would go to the start of the foundation her parents would start in her honor. It is my honest hope that will not be the case, but we can't control what happens in life or death sometimes, and this is one of those times. I will look to making commemorative T-shirts to send to any donors who choose to donate $100 or more and request to have a momento of the cause. Thank you so much for taking the time to read this, and for helping me either help my friend and her family, or provide me the ability to help fulfill her last wishes. Let's all pray for Jacqui and hope she kicks cancer's ass!!! You can follow Jacqui's journey on her caringbridge.org page using the following link. https://www.caringbridge.org/visit/jacquelinegregory/mystory ‌ If you follow and/or message her via Caring Bridge please do not reference this Go Fund Me page as it is currently a surprise for her and her family. Feel free to leave well wishes here and she will read them once I inform her after her current trial treatments in Texas.

$0

MONEY RAISED
  •  
  •  
  •  
Organized by

Brien Krawitz

This is a direct to organizer fundraiser.

Donor Comments

Report this page — Let Us Know if you think this page is breaking the law or the CrowdRise Terms