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James Rex's Fundraiser:

James and Monica "Tri" to Cure FA

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BENEFITING: Friedreichs Ataxia Research Alliance Fara

EVENT DATE: Sep 25, 2016

James Rex

THE STORY:

Hi Friends -

We are participating in the 2016 Zoot Westchester Triathlon to support an incredible organization, Friedreich's Ataxia Research Alliance ("FARA") - http://www.curefa.org/.

A dear friend of ours was recently diagnosed with Friedreich's Ataxia ("FA") and we are participating in this triathlon to support them and this organization at large.

Friedreich’s Ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder. Only 5,000 people in the United States (1 in 50,000 people) and 20,000 people (1 in 350,000) in the world have Friedreich's ataxia. Most individuals have onset of symptoms of FA between the ages of 5 and 18 years. However, adult or late onset FA is less common (less than 25% of diagnosed individuals), but can occur anytime during adulthood.

FA typically results in the slow but steady loss of coordination in the arms and legs, general fatigue, vision / hearing impairment, and serious heart conditions, often leading to the required use of mobility devices and premature death.

FARA's Mission is to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases.

While no cure for FA currently exists, there has been significant progress in advancing various forms of treatment and FARA has been the leading advocate and provider of funding for these programs.

We are excited to support this wonderful organization and ask for your help in this challenge.

 

Best,

James & Monica Rex

DONATE

To This Fundraiser

$4,575

MONEY RAISED
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  • James B. Rex

    $250

  • Nikolay Tsintsadze

    $100

  • Anonymous

    $1,000

  • Will Smith

    $25

  • Anonymous

    $100

  • Pug

    $20

  • Brent Banks

    $100

  • Anonymous

    $20

  • Anonymous

    $50

  • Aimee Mungovan

    $100

  • Anonymous

    $250

  • T-Hamm

    $50

  • Colin Convey

    $100

  • Brian Biga

     

  • Michael Tarulli

    $100

  • Theo Kim

    $150

  • Sohel Roopani

    $50

  • Nicole Tormey

    $50

  • Scott Monaco

    $50

  • Austin Montgomery

    $25

  • Anonymous

    $50

  • Grace Fuscoe

    $100

  • JP Rotchford

    $25

  • Anonymous

    $50

  • Robbie Walters

    $50

  • Anonymous

    $25

  • Greg J

    $100

  • Alex Miller

    $250

  • Blake Taylor

     

  • Ali Bohrer

    $50

  • Ben

    $25

  • Jeff Strecansky

    $25

  • Nancy & Brad Rex

    $600

  • AMY T. BOHRER

     

  • Kevin Rohnke

    $100

  • Neha Jatar

    $25

  • Anonymous

    $25

  • Dan Howard

    $100

  • Mary Carlisle Crehore

    $50

  • Paul Parker

    $250

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229% Raised of $2,000 Goal

Fundraise for this Campaign

The Team: $4,575 TOTAL RAISED SO FAR

JOIN THE TEAM

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Donor Comments

Paul Parker

Paul Parker

DONATION: $250

Congratulations for the event and dedication to the cause! 10 months ago

Mary Carlisle Crehore

Mary Carlisle Crehore

DONATION: $50

For the swans and one of my favorite friends 11 months ago

Dan Howard

Dan Howard

DONATION: $100

good luck 11 months ago

Anonymous

ANONYMOUS

DONATION: $25

11 months ago

Neha Jatar

Neha Jatar

DONATION: $25

Good luck guys! 11 months ago

Kevin Rohnke

Kevin Rohnke

DONATION: $100

11 months ago

AMY T. BOHRER

AMY T. BOHRER

Good luck !!! 11 months ago

Nancy & Brad Rex

Nancy & Brad Rex

DONATION: $600

So proud of you both! 11 months ago

Jeff Strecansky

Jeff Strecansky

DONATION: $25

11 months ago

Ben

Ben

DONATION: $25

Good luck! 11 months ago