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Jamie and Tessa's Fundraiser:

Jamie & Tessa - LoveLiv Cycle

Jamie and's Photo
 

WHY WE RIDE......
February 26, 2016

When we heard a SoulCycle fundraiser for Liv…Tess and I both asked if there would be Beach Cruisers…. All kidding aside….Sharon is one  See more

BENEFITING: A FOUNDATION BUILDING STRENGTH INC

EVENT: LoveLiv Cycle

EVENT DATE: Mar 13, 2016

Jamie and Tessa

THE STORY:

For its fourth annual fundraiser benefitting A Foundation Building Strength (AFBS), LoveLiv will once again have a Soul Cycle ride! AFBS remains the only non-profit worldwide dedicated to finding treatment for Nemaline Myopathy, a rare muscle disease that Liv has. People with NM, including Liv, generally cannot eat, breathe and walk on their own. Life expectancy is greatly reduced due to respiratory complications. Although Liv has made great strides, she just turned 4 years old and still cannot walk or crawl, and relies on a feeding tube for some of her nutrition.  Like so many with NM, her speech is affected by severe muscle weakness in her mouth.  

 

With your help, we can find treatment to better Liv's life and those with NM.  AFBS is seeking to fund a gene therapy study for Nebulin based Nemaline Myopathy, targeting the same mutation Liv has.  If this study is successful, Liv could have treatment in a few years.  This is one of the most exciting proposals we have received and we need your help! 

DONATE

To This Fundraiser

$1,300

MONEY RAISED
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  • Novak Family

    $100

  • Rosemary Brakmanis

    $25

  • Shannon Dean Sinunu

    $25

  • Tessa Niles

    $100

  • Kathleen Gorman

    $25

  • Cari Woolcott

    $100

  • Andi Callaway

    $100

  • Annie & Tony Thomas

    $500

  • Joe/Camille Byrne

    $100

  • Tracy Thomas

    $25

  • Erin Stephens

    $25

  • Ali & David Kuperberg

    $25

  • Larry and Mandy

    $50

  • Marlo Thomas

    $100

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Donor Comments

Marlo Thomas

Marlo Thomas

DONATION: $100

2 years ago

Larry and Mandy

Larry and Mandy

DONATION: $50

thanks for doing this. 3 years ago

Ali & David Kuperberg

Ali & David Kuperberg

DONATION: $25

3 years ago

Erin Stephens

Erin Stephens

DONATION: $25

3 years ago

Tracy Thomas

Tracy Thomas

DONATION: $25

3 years ago

Joe/Camille Byrne

Joe/Camille Byrne

DONATION: $100

3 years ago

Annie & Tony Thomas

Annie & Tony Thomas

DONATION: $500

3 years ago

Andi Callaway

Andi Callaway

DONATION: $100

Love to you Liv, Sharon, Jamie and Tessa 3 years ago

Cari Woolcott

Cari Woolcott

DONATION: $100

3 years ago

Kathleen Gorman

Kathleen Gorman

DONATION: $25

3 years ago