By now, Many of you already know my PH Journey, and what research means to me. I signed up as a virtual walker to help with research, and I need your help. What I am doing is raising money for GO PHAR Research. This campaign will help monitor our activity and, well...Here is exactly what PHAR is all about.
PHAR is the key to helping to answer research questions with real world data, that will help advance care and quality of life for people living with PH. It is also the key to accelerating research in the United States.
PHAR will have the capacity to unveil current practice patterns, trends and evaluate patient outcomes with new and different types of combination treatments, where there is limited information. We believe it will especially benefit children with PH (where we lack studies, trials and FDA approvals. In addition to PHA’s annual publications relaying key findings, any stakeholder (physician, researcher, or group) is eligible to ask questions of PHAR to support and guide research. PHAR will provide information that may allow those affected by PH to realize a positive life changing experience, and researchers the opportunity to develop new understanding of the disease and accelerate new research opportunities.
Will you help me with this endeavor to raise money. Any little bit helps and it is going for research. I have until October