Jason Cendroski Pans/Pandas Fund
Organized by: Cathy Cendroski
As July comes to an end....
August 02, 2017
Jason has a tender heart and is a kind son who has blessed us in so many ways. His life, and our lives, have been impacted by the life altering effects due to Pans/Pandas. Pandas is Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. PANDAS describes a group of children who seemingly overnight develop symptoms of OCD (obsessive compulsive disorder), involuntary movements (tics), mood disturbances and other serious health problems following an infection with GABHS or strep bacteria, as in a simple strep throat, or scarlet fever. Other symptoms may include the sudden appearance of eating disorders, behavioral regression, anxiety, sleep problems, hyperactivity, learning disorders, behavioral problems, urinary frequency or bedwetting. Check out the pictures I've posted to see the change in him. He is now 20 and he currently can not work, he is not self-sufficient. He had IVIG (Intravenous immunoglobulin) treatments at a hotel, monthly for about 15 months and they did help him to be able to read again and getting out and about more, shopping for his own food, anti-bacterial wipes, clothing, etc. (he changes clothes every month or two, and that is a change, as he was only changing his clothes every 3-4 months).The plan is to have him get residential treatment at the Roger's Memorial OCD hospital, but first he needs to be in a home, with the help of the CA disability - called "Regional Centers", away from us (we are the center of his OCD issues) so that he can gain weight (the hospital has a weight requirement). Both the home and the hospital will be partly our responsiblity, so please give, if you can, so Jason can bravely continue battling this illness. I'm hoping for 1,000 people giving 5 to 10 dollars. You can donate anonymously if you'd like. Most importantly of all, a committment to pray for his complete recovery is earnestly asked for and thank you so much for your help.
The April 2017 issue of "Discover" magazine has an excellent aritlce on Pans/Pandas.
Here's a link to a new movie about PANDAS, scroll down on the home page to see the trailer: www.mykidisnotcrazy.com
Note: here's two stories about PANDAS from our area, the San Fransico bay area/Silicon Valley area http://www.mercurynews.com/health/ci_25600426/misdiagnosed-bipolar-one-girls-struggle-through-psych-wards
We are so thankful to have Stanford Children's PANS/PANDAS clinic within driving distance! (another link http://med.stanford.edu/pans.html).