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Natalie Smole's Fundraiser:

Jaynie's Walk for Pediatric Stroke Awareness

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BENEFITING: CHILDREN'S HEMIPLEGIA AND STROKE ASSN.

EVENT DATE: Sep 06, 2014

Natalie Smole

THE STORY:

Jaynie, Zach, and I would like to run/walk to raise awareness for Children's hemiplegia and infantile stroke.

Around 6 months old we noticed that Jaynie was favoring her right arm and leg.  Our doctor told us to monitor it and as the milestones kept coming we noticed she was delayed in sitting up, crawling, and being able to hold things.  Her left hand and arm were getting tighter and tighter.  It became really difficult to open her fist or raise her left arm.  At 9 months old, after an EEG and an MRI, Jaynie was diagnosed with a stroke in utero which has caused her to be hemiplegic on her left side.  Although the news has definitely been hard on us, we love her SO much and take comfort in God's plan for her.  He has given all of us a wonderful support system where we get much of our strength.  We cannot be thankful enough for our family and friends!

Jaynie update: Thus far she’s doing really well post diagnosis! We’re starting her in weekly physical therapy, and then in three months she’ll start speech therapy once a week too.  I’ve had a lot of people ask me if she’ll be able to walk, talk, or use her left side after therapy-and the truth is we don’t know.  We’re very hopeful but she’s really too young to tell at this point.  She can army crawl on her belly and say bababa at 11 months.  All we do know is that she loves eating her vegetables, and loves looking at herself in the mirror (Just like mommy). :)

8/29: Jaynie is 1 yr old, is enrolled in both Occupational and Physical Therapy, and is doing great!  We're still working on crawling properly and putting weight on the left side, but we have seen progess.  Her therapist recommended a foot brace as her left toes are getting curlier, so we're waiting on approval for that. Luckily, she has a mother who can be super annoying when she wants something as her advocate.  I'm sure we'll get approval soon!

 

The donations will go directly to the Children's Hemiplegia and Stroke Association. CHASA awards all sorts of grants for hemiplegic children that need things like orthotics for their hand and foot, as well as connect families of little stroke survivors and children with hemiplegia around the world to share support and information.
CHASA also funds innovative research studies and has teamed with researchers in dozens of studies to recruit study participants.

We will be running theTwilight Run/Walk/Roll & Post Race Party

Location:
Lake Forest, IL
Date:
Sat 09/06/2014
Distances:
5-K, Competition Walk/Run

If you're in the area and would like to run with us or join our team email me at NatalieSmole@gmail.com and I will send you more details!

 

"I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was placed in the secret place, when I was woven together in the depths of the earth.  Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be."- Psalm 139:14-16


 

$4,515

MONEY RAISED
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  • Gina Sloan

     

  • The Chapmans

     

  • The Wols Family

    $150

  • The Gonzo's

    $20

  • Jennifer & Joe Sanchez

    $50

  • Seth Smole

    $200

  • George & Kat

    $200

  • The Rossi Posse

    $75

  • Michelle

    $25

  • Julissa Mercado-Badgett

    $20

  • Rob & Kathy Stenander

    $50

  • dave and tiff

     

  • Amber DeWald

    $40

  • Anonymous

     

  • D. Rawls

     

  • Ali

    $10

  • Brittany Grung

    $40

  • Drew Hester

    $50

  • Mike Rasmussen

    $20

  • Becky Staton

    $50

  • Liza Mondonedo

    $100

  • Shannon Sloan

     

  • The Miglore Family

     

  • Joe Mroz

    $50

  • Carolyn F

    $50

  • Michaela & Amelia Thomas

    $100

  • Jaclyn Ochoa

    $20

  • Anonymous

     

  • Denise & David Ghaowi

    $50

  • Akuffo's

    $70

  • Paula Motzny

    $20

  • Kristin

    $50

  • Golfito1

    $100

  • Scott Hammack

    $20

  • Noreen Suing

     

  • Cristina & Frankie

    $50

  • Dan Stone

     

  • Anonymous

    $25

  • Connie Anderson

    $25

  • Jordyn

    $25

  • Rob Allen

    $50

  • Sladjana Milovanovic

    $50

  • Joe & Maura

     

  • The Hanks Family

    $50

  • Mark Cahill

     

  • Patty Zavala

    $50

  • Heywood family

    $50

  • Monica & Luis Mercado

     

  • Monica Nunez

    $50

  • Tom & Maya Kowalczuk

    $50

  • O

    $100

  • Eric and Emily Rickert

    $100

  • Jonathan Perry Censky

     

  • Angela Devore

    $50

  • Jonathan Szelewa

    $50

  • Anonymous

     

  • Ongena Family

    $25

  • Kim Bertolasi-May

     

  • Christine Ramirez

    $10

  • Crosswhite Family

     

  • Anonymous

    $50

  • Michele Batz

    $50

  • Big Baby Staton

    $201

  • Kim Family

    $30

  • Peggy Labus

     

  • Mark and Susan Sanchez

    $25

  • Kendall Family

    $25

  • Carmen Ochoa

    $50

  • Ross & Melissa Berman

    $150

  • Anonymous

    $25

  • DeAnn Nartatez

    $25

  • Anonymous

    $100

  • The Solita Family

    $25

  • Lizzie McGuire

    $100

  • Karen and Michael

     

  • The Yasko's

    $70

  • The Yasko's

    $39

  • jim and pam smole

    $50

  • Cheryl tanner

    $50

  • Chines and Frank

    $50

  • Anonymous

    $50

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903% Raised of $500 Goal

Fundraise for this Campaign

The Team: $4,515 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Natalie Smole

Amount Raised

$3,140

 

628% Raised of $500 Goal

Fundraiser Title

Zach Smole

Amount Raised

$495

Fundraiser Title

Seth Smole

Amount Raised

$495

Fundraiser Title

Jennifer Sanchez

Amount Raised

$150

Fundraiser Title

Amy Z Rossi

Amount Raised

$100

Fundraiser Title

Amanda Gonzalez

Amount Raised

$70

Fundraiser Title

Gina Sloan

Amount Raised

$45

Fundraiser Title

Julissa Mercado-Badgett

Amount Raised

$20

Donor Comments

Anonymous

ANONYMOUS

DONATION: $50

4 years ago

Chines and Frank

Chines and Frank

DONATION: $50

4 years ago

Cheryl tanner

Cheryl tanner

DONATION: $50

4 years ago

jim and pam smole

jim and pam smole

DONATION: $50

Jaynie Smole pediatric stroke awareness 4 years ago

The Yasko's

The Yasko's

DONATION: $39

4 years ago

The Yasko's

The Yasko's

DONATION: $70

4 years ago

Karen and Michael

Karen and Michael

4 years ago

Lizzie McGuire

Lizzie McGuire

DONATION: $100

4 years ago

The Solita Family

The Solita Family

DONATION: $25

4 years ago

Anonymous

ANONYMOUS

DONATION: $100

4 years ago