Natalie Smole wrote -
As most of you know, our daughter Jaynie was diagnosed with Hemiplegic Cerebral Palsy at 9 months old, due to a stroke in utero. This caused brain damage to her right frontal lobe, and has made her hemiplegic on the left side of her body. Our family would like to raise money and support for an incredible organization in her honor.
Jaynie update 7/1/2015: She is almost 2 years old and has had an amazing year! Zach and I have moved past “milestones” and understand that things will happen for her in “Jaynie” time. We’ll never know to what extent she’ll live a “normal” life because all cases depend on severity of the injury, treatments, as well as overall personality of the child. She is one tough, determined little girl so I have no doubt she’ll achieve more than we can imagine now. Her family is already SO proud of her. She is in OT, PT, Speech and music every week. (~210 hours of therapy in her life so far!) She wears a foot brace and hand splint, and gets botox injections in both, every 3-6 months to loosen her muscles so she can walk. She loves tackling her cousins and giving them unsolicited kisses.
We are doing this walk again this year because we are so thankful to have Jaynie in our lives, and would like to express that by giving back to all the other little stroke survivors out there. She is loved by all who meet her, especially by her grandparents who call her their “little angel sent from God”. We love her SO much and take comfort in God's plan for her. He has given all of us a wonderful support system where we get much of our strength. We cannot be thankful enough for our family and friends!
The donations will go directly to the Children's Hemiplegia and Stroke Association. CHASA awards all sorts of grants for hemiplegic children that need things like orthotics for their hand and foot, scholarships for college, as well as connect families of children with hemiplegia around the world to share support and information.
CHASA also has teamed with researchers in dozens of studies to recruit study participants.
We will be running the Twilight Run/Walk/Roll & Post Race Party
Lake Forest, IL
Date: Sat 09/12/2015
5-K, Competition Walk/Run
If you're in the area and would like to run with us or join our team email me at NatalieSmole@gmail.com and I will send you more details!