Jayse is a 7 month old,happy, beautiful little baby boy who was born with Sickle Cell Disease -SS. Jayse's dad and I have another son who was thought to have had SCD when he was born. So my husband and I took him to the hematologist to get tests run and by God's Grace, our now 3 year old son had not had SCD but the trait. The hematologist assured my husband and I that our children would not have the chance of having SCD because I have a rare trait called Thalassemia. My husband and I were pregnant with Jayse in 2015, we had no worries about SCD because of what the physican had reassured us in 2012. We have no regrets and do believe that God does everything for a reason. Yet, ignorance to ALL the details of this disease had caused my husband and I to not have prepared ourselves for this life for our beautiful baby boy! I am a nurse, actually a wound care nurse and I love to teach as well as learn new things every single day. I would love for each person who comes in contact with my son obtain the opportunity to be completely familiar with the disease and able to educate others about living a healthy lifestyle with Sickle Cell Disease, as well as the ability to determine the triggers of complications. I am also having an educational presentation with our friends and family at the end of September to spread the word about SCD. As I want each person to know how important it is to know everything possible about the person whom you have children with.