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Christi Ormeroid's Fundraiser:

Jeans 4 Genes on Rare Disease Day!

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Christi Ormeroid

THE STORY:

World Rare Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families. We are asking everyone to show your support by wearing your favorite Jeans for Levi's RARE GENES and to make a monetary donation in his honor to help fund Gene Therapy for Sanfilippo Syndrome Type C. We are holding a fundraiser at Levi's school for the staff to donate $5 to wear jeans on Monday the 29th (Rare Disease Day) in support of Levi and all other rare diseases. You too can help by holding a similar fundraiser by asking your friends, classmates and / or co-workers to support in wearing Jeans 4 Levi's Genes and making a donation to our cause! Wear PURPLE as that's the color that stands for HOPE and represents the RARE our diseases Sanfilippo Syndrome (MPS).

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