October 25, 2016
I have two good friends that live with T1D every day...
I asked Tammy to write up a quick note on what its like living with a child who has T1D...her note is much more than I asked for...see below
I will never know what it is like to live life with type 1 diabetes. I will never know how fuzzy, off, and out of focus a 400 feels, and I will never know how disorienting and scary a 42 feels. As often as I ask, as often as she has explained to me, as often as I have witnessed these, I will still never truly understand.
I will never understand how scary it was for Riley (7 at the time) to think she was losing her vision. Or the fear she felt when she would be trapped in a car with no water and no way to quench her thirst, or the constant feeling of having to urinate for weeks prior to her diagnosis. Or how she must prick her little fingers 10-12 times a day. Or how she has to stop in the middle of her soccer game and check her blood sugar or sit out during practice because of a low.
This is what I do know. I am the parent of a type 1 diabetic. And while I don’t know what it’s like to live with diabetes, I do know what it’s like to live with a diabetic. And I will use every resource I have available to me to make sure she lives a healthy, productive life. I will, until the end of my days, fight for her, help her, advocate for her, support her, care for her and love her. I will pray for a cure. Wish for a cure. Walk for a cure. Scream for a cure. And work towards a cure. I do know how it feels to know your child has a disease that can’t be cured. A disease that can be life threatening. A disease that can affect her eyes, kidneys and can even take precious years from her life. And that doesn’t feel good at all.
I will live the rest of my life with only 4 interrupted hours of sleep every night to check her blood sugar so she doesn't go low during the night and never wake up, because that is what I feel I need to do. I will care for her and carry the brunt of her disease on my shoulders for as long as she will let me, and when she decides she is ready to take on more responsibility for her disease I will show her and teach her and continue to support her in any and every way I can.
Why? Because she is my daughter. I love her. She will always be my little girl. And diabetes is a crappy thing to get as a kid. Am I responsible for her diagnosis? No, I am not. But I carry a responsibility for her care. And I take that job seriously.
What ever it takes. For how ever long. And at whatever cost. Until there is a cure. We are a T1 family. We work hard every day to kick diabetes butt. Some days we win. Some days we lose. But everyday we fight until the end. Until there’s a cure.
So I am asking you once again this year to please donate to Jeff Lamb’s JDRF’s Page. Every dollar you donate is one step closer to finding a cure .If you have any questions please don't hesitate to call Jeff @ 803-707-4220 or email him firstname.lastname@example.org