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Jennifer Heatly's Fundraiser:

NYC Marathon for United Mitochondrial Disease

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Jennifer's Photo
Jennifer's Photo
Jennifer's Photo
Jennifer's Photo
Jennifer's Photo
Jennifer Heatly

THE STORY:

I am dedicating my NYC Marathon run to my good friend, Elizabeth Piro. Lizzy is 12 years old and has been diagnosed with a very rare form of Mitochondrial Disease, specifically Kearns Sayer Syndrom. She is one of only 264 diagnosed cases in the world.

KSS is a rare neuromuscular disorder with onset usually before the age of 20. It is the result of abnormalities in the DNA of mitochondria, small rod-like structures found in every cell of the body that produce the energy that drives cellular functions..

Please help me make a difference in Lizzy's life, and for the lives of those affected by Mitochondrial Disease. I'm asking if you can donate even just $1 per mile.

You can learn more about Mitochondrial Disease here, www.umdf.org.

Thank you for taking the time to read this and thank you for your donation.

DONATE

To This Fundraiser

$2,096

MONEY RAISED
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  • Jodi Hasbrouck

    $25

  • Anonymous

    $50

  • Liz Dougherty

    $50

  • Norma Gardella

    $50

  • Linda Peloquin

    $25

  • Robert & Brigida Sedita

    $52

  • Matt Damon

    $100

  • Frank and Paula Piro

    $100

  • Aunt Donna

    $20

  • Sean Keane and Family

    $25

  • Aunt Sandy, Uncle Jim and Jimmy

    $50

  • Ross, Katherine, Carmen & Francesca Piro

    $100

  • aunt cindy and uncle chuck

    $150

  • auntie ri and uncle mark

    $200

  • Karen and Jeremy Ginsberg

    $25

  • Margaret Masvidal

    $100

  • Tiffany Strazza Zavitz

    $26

  • Anonymous

    $50

  • Cousin Amanda and Family in Florida

    $50

  • DOUG P

    $50

  • Meegan

    $25

  • Kim Emmet

    $25

  • Jim and Amy McGuire

    $300

  • Penny Bloom Mola

    $50

  • Ben Affleck

    $78

  • Marian Edvardsen

    $20

  • Marcia Piro Ellis

    $100

  • MIMI & CLARENCE

    $100

  • Mary Beth & Gary Wetmore

    $25

  • ANGIE CONNORS

    $50

  • Matthew & Sonia Nittoly & family

    $25

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210% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $2,096 TOTAL RAISED SO FAR

JOIN THE TEAM

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Donor Comments

Matthew & Sonia Nittoly & family

Matthew & Sonia Nittoly & family

DONATION: $25

6 years ago

ANGIE CONNORS

ANGIE CONNORS

DONATION: $50

FRIENDS OF THE FERGUSONS IN FL 6 years ago

Mary Beth & Gary Wetmore

Mary Beth & Gary Wetmore

DONATION: $25

best wishes to Lizzie 6 years ago

MIMI & CLARENCE

MIMI & CLARENCE

DONATION: $100

Prayers must continue by all of us. 6 years ago

Marcia Piro Ellis

Marcia Piro Ellis

DONATION: $100

6 years ago

Marian Edvardsen

Marian Edvardsen

DONATION: $20

6 years ago

Ben Affleck

Ben Affleck

DONATION: $78

6 years ago

Penny Bloom Mola

Penny Bloom Mola

DONATION: $50

6 years ago

Jim and Amy McGuire

Jim and Amy McGuire

DONATION: $300

6 years ago

Kim Emmet

Kim Emmet

DONATION: $25

6 years ago