The Children's Tumor Foundation's NF Endurance Team is running the 2015 TCS New York City Marathon to end NF through research.
I am running the NYC marathon for my daughter Persephone who suffers daily from the effects of brain and spinal tumors as well as learning difficulties associated with Neurofibromatosis or NF.
1 in 3000 births has NF, a genetic disorder that causes tumors to grow on nerves throughout the body, for which there is no cure...yet. In the past 6 years Persephone has undergone regular MRIs to monitor the growth of tumors in her brain, optic nerves and spine as well as regular occupational and speech therapy to deal with developmental and learning challenges. Despite living with this disease, Persephone has an incredibly positive and contagious spirit, bringing love and light into the lives of her family and friends. I am proud and excited to run to raise awareness for NF and show Persephone that with determination and hard work, anything is possible. Please support our family in funding research to end NF.
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