Medical treatment for a child
Organized by: Angie Mathews
Jeremiah is a 9 year old with a 2 year old mental capacity. He has a rare form of epilepsy, called Lennox Gastaut Syndrome. Without medications and bimonthly infusions of immunoglobulins, he has upwards of 300 seizures per DAY! His treatments get quite expensive and insurance doesn't cover all of his medications. He has the ability to go out of state for new treatment options that are new and not available in Utah. His insurance will not pay for any of it. It will cost between 50 and 80 thousand dollars, but it could cut down the need for so many medications and still cut his seizures drastically. He is a very happy boy that deals with all the hospitalizations and pokes for IVs and lab work like a champ! He knows when seizures are coming and it's sad when he asks for his "butt medicine" (rectal rescue medication ). He deserves the right to be as normal of a kid as he can be. He is a sweetheart and melts the hearts of those that see him.