Jeremy Kohlberg: The Rock Star Superhero of Superheroes!!!
Organized by: Friends of the Kohlberg Family
The final Journey
April 22, 2017
EVENT DATE Feb 13, 2017
When Jeremy was 9 years old, he was brought into the emergency room for lethargy and vomiting. A few hours later, we were given life-altering news – Jeremy had a mass on his brain the size of a plum that was wrapped around his brain stem. On Christmas Day 2012, he endured a 9 hour surgery to remove the malignant tumor and soon after was diagnosed with a rare form of cancer called ependymoma. Since his diagnoses, Jeremy has had a total of 10 brain surgeries. Sadly, his cancer is not curable, with no viable treatments...only tumors that need to be removed. In December, he was given six months to live, so right now he's living on borrowed time and his parents feel blessed for every extra day.
Jeremy has had several treatments; Three rounds of radiation(including one Full Brain and Spine)Three clinical trials, and chemotherapy in his very young life. His string of courage beads – a bead given for every poke, test, and procedure – is 28 feet long. And Jeremy can proudly tell you about every single one of his beads!
Unfortunately Jeremy's tumors have continued to grow and he is in the End Stages of his diagnosis. And only has months to live. There is one opportunity to use an off label immunotherapy drug, but the Kohlbergs are waiting for approval, and insurance to come through. This is a costly treatement in the six digits. It has a shot but right now does not change Jeremy's prognosis.
Today, the Kohlberg Family – John, Carol, Charlie, Jeremy, and Gabe – are struggling financially. Friends of the family have come forward to help raise funds. The mounting costs associated with a terminally ill child are overwhelming – the unpaid cost of the chemo treatments alone are nearly $7000. Add travel back-and-forth to appointments, parking at hospital visits, the three week trips back-and-forth to Chicago for the cancer study, unpaid time off work for John during every surgery, a mom who cannot work due to all the medical appointments...the list goes on and on!
Donations are requested to cover $30,000 in unpaid medical-related bills and upcoming Hospice Care and Funeral Costs.
There are two ways to stay up to date on Jeremy. His Caring Bridge.
Friends of Jeremy Kohlberg thank you, and any help you can give is greatly appreciated.
"When one person in the family has cancer, we all have cancer"