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Jeremy Kohlberg: The Rock Star Superhero of Superheroes!!!

Organized by: Friends of the Kohlberg Family

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The final Journey
April 22, 2017

Good Afternoon. We just wanted to give a brief update on Jeremy Kohlberg. He is in his final hours, and right now we are keeping him comfortable. See More

EVENT DATE Feb 13, 2017

THE STORY:

When Jeremy was 9 years old, he was brought into the emergency room for lethargy and vomiting. A few hours later, we were given life-altering news – Jeremy had a mass on his brain the size of a plum that was wrapped around his brain stem. On Christmas Day 2012, he endured a 9 hour surgery to remove the malignant tumor and soon after was diagnosed with a rare form of cancer called ependymoma. Since his diagnoses, Jeremy has had a total of 10 brain surgeries. Sadly, his cancer is not curable, with no viable treatments...only tumors that need to be removed. In December, he was given six months to live, so right now he's living on borrowed time and his parents feel blessed for every extra day.

Jeremy has had several treatments; Three rounds of radiation(including one Full Brain and Spine)Three clinical trials, and chemotherapy  in his very young life.   His string of courage beads – a bead given for every poke, test, and procedure – is 28 feet long. And Jeremy can proudly tell you about every single one of his beads! 

Unfortunately Jeremy's tumors have continued to grow and he is in the End Stages of his diagnosis. And only has months to live.  There is one opportunity to use an off label immunotherapy drug, but the Kohlbergs are waiting for approval, and insurance to come through. This is a costly treatement in the six digits. It has a  shot but right now does not change Jeremy's prognosis.

Today, the Kohlberg Family – John, Carol, Charlie, Jeremy, and Gabe – are struggling financially. Friends of the family have come forward to help raise funds. The mounting costs associated with a terminally ill child are overwhelming – the unpaid cost of the chemo treatments alone are nearly $7000. Add travel back-and-forth to appointments, parking at hospital visits, the three week trips back-and-forth to Chicago for the cancer study, unpaid time off work for John during every surgery, a mom who cannot work due to all the medical appointments...the list goes on and on!

Donations are requested to cover $30,000 in unpaid medical-related bills and upcoming Hospice Care and Funeral Costs.

There are two ways to stay up to date on Jeremy.  His Caring Bridge.

https://www.caringbridge.org/visit/jeremykohlberg31/journal/view/id/578adc39a589b4885e9575e6

or Facebook.

https://www.facebook.com/kohlbergstrong

Friends of Jeremy Kohlberg thank you, and any help you can give is greatly appreciated.

"When one person in the family has cancer, we all have cancer"

Carol Kohlberg.

 

DONATE

To This Fundraiser

$17,191

 

57% Raised of $30,000 Goal

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  • Joan & Ken Tood

    $25

  • Sheila Brownfield

    $25

  • The Becker Family

    $50

  • Will Fullen

    $100

  • Peter & Janet Grottodden

    $50

  • Anonymous

    $10

  • Laura and Paul (your neighbors)

    $50

  • Kathie Dahl

    $50

  • Dan Derezinski

    $50

  • Della' Olson/Family

    $50

  • The Lebahn family

    $100

  • A Community Friend

    $20

  • The Delaune Family

     

  • Rick and Tracy Eller

    $100

  • Anonymous

    $200

  • Anonymous

    $25

  • Kathryn Buck

    $20

  • From all his friends at Chippewa Middle School

    $500

  • The Missaghi Family

    $25

  • Anonymous

    $100

  • The Chung Family

    $200

  • Suzanne & Carol

     

  • Amy Robb

    $25

  • Anonymous

     

  • Grigsby family

     

  • Connor Pederson Family

     

  • Ali Kirtay

    $100

  • Terri Andrews Hunter

     

  • Demeny Family

    $50

  • karol benson

    $50

  • Blomquist/Mars Families

    $100

  • Daria Fallgatter

    $25

  • Eunice Tong

    $50

  • The Ganske Family

    $100

  • The Cao Family

    $100

  • The Nelson family

    $50

  • The Brown Family

    $50

  • Iyer Family

    $500

  • The Wiggenhorn family

    $100

  • The Gette Family

    $250

  • Kolodjski Family

    $50

  • Hanna Blume

    $50

  • The Stellmack Family

    $100

  • Anonymous

     

  • Emily Thompson

    $50

  • Anonymous

    $100

  • Anonymous

     

  • Anonymous

    $100

  • Ashley Weller

    $50

  • Anonymous

    $25

  • Anonymous

     

  • jacob wismer

    $25

  • Karen Ainslie

    $25

  • The Vandevelde Family

    $25

  • Anonymous

    $25

  • Carlson's from Oakdale MN

    $25

  • Heidi Heller

    $25

  • Anonymous

     

  • Brandon Countz

    $25

  • Chris Lamont

    $25

  • Anonymous

     

  • Kathie Dahl

    $50

  • J.D. King and Family

    $25

  • Karen Ketola

    $25

  • Classmate from Chippewa

    $25

  • Anonymous

    $20

  • Anonymous

    $25

  • Anonymous

    $50

  • Daniel Weidner

    $25

  • J.D. Moberg

     

  • A 7th grade friend and family

    $50

  • Anonymous

    $25

  • Tammie Rhoades

    $50

  • Anonymous

    $25

  • Anonymous

    $100

  • The Hagel Family

    $50

  • The McHenry Family

    $50

  • The Chervany Family

    $100

  • Anonymous

    $25

  • Anonymous

     

  • Raymond Guo

    $25

  • 7th grade Chippewa classmate/family

    $100

  • Matching my sister Karols dontation

    $50

  • Tanner

    $100

  • Joan Lawrence

     

  • Susan Davis-Ali and family from Gloria Dei

    $100

  • Brad and Marcia Ballinger

    $50

  • Anonymous

    $25

  • In the name of my 6th grader

    $25

  • Michelle Morse-Wendt

    $25

  • Jenne Tunnell

    $100

  • Meg & Scott Stevenson

    $50

  • The Davern Family

     

  • Anonymous

    $100

  • Quinnell's - Shakopee

    $25

  • The Wright Family

    $25

  • The McCullough Family

     

  • Anonymous

     

  • Anonymous

    $20

  • Gregory Family

     

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Organized by

Friends of the Kohlberg Family

This is a direct to organizer fundraiser.

Donor Comments

Gregory Family

Gregory Family

In memory 4 months ago

Anonymous

ANONYMOUS

DONATION: $20

I have never met your family or Jeremy, but I think of you often. I am inspired by Jeremy's courage and the love that you have given Jeremy and his brothers. 4 months ago

Anonymous

ANONYMOUS

4 months ago

The McCullough Family

The McCullough Family

5 months ago

The Wright Family

The Wright Family

DONATION: $25

5 months ago

Quinnell's - Shakopee

Quinnell's - Shakopee

DONATION: $25

5 months ago

Anonymous

ANONYMOUS

DONATION: $100

5 months ago

The Davern Family

The Davern Family

5 months ago

Meg & Scott Stevenson

Meg & Scott Stevenson

DONATION: $50

Honoring a brave young warrior. I know you are spreading your amazing smile in wondrous new realms Jeremy. 5 months ago

Jenne Tunnell

Jenne Tunnell

DONATION: $100

5 months ago

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