BENEFITING: Immune Deficiency Foundation
This year I will celebrate my 30th birthday. You may think what's the big deal, but it is. I was born with Severe Combined Immune Deficiency (SCID). Many SCID patients do not survive beyond two years . Please join me in celebrating by donating to IDF. It's such an awesome cause and the best part is, all the money I raise goes directly to IDF’s research and education. I couldn't be more excited to celebrate the big 30 with my family and friends.
Can you make a $30 or any donation to my page?
From birth through grade school and to the present, I have had many phenomenal days and challenges days, but I had life. I played sports, performed in plays, graduated from high school, went to college, and even traveled the states. I have been in the presence of senators and state representatives, a guest on the CBS Morning Show, the Phil Donahue Show, Great Day Houston Show and appeared in Woman's Day Magazine. I worked in corporate America jobs and currently, I am an entrepreneur and looking forward to fulfilling my dreams.
Also, I am a peer support volunteer as well as a mentor with the Immune Deficiency Foundation. I can boldly say, "This is my life... I can live it because I received a bone marrow transplant."
I was born with Severe Combined Immune Deficiency Disease (SCID). Severe Combined Immune Deficiency is a disease in which the body cannot fight off bacterial or viral infections. Infants diagnosed with SCID can be born without T cells, B cells or Nature Killer cells. In the early '70's, infants with SCID were placed into the sterile enviroment of a plastic bubble, like David Vetter. SCID is considered the most serious of the immune deficiency diseases. For many years, a bone marrow transplant was the only cure.
When I was two weeks old, I received a bone marrow transplant. The donor was my two-year old sister, Noel. I thank God she was the perfect match for me. I was so lucky and very blessed. There are so many other children that were not as lucky as I was. My brothers, Deidrick and Wesley unfortunately both died at an early age from SCID.
Deidrick was born in 1972. He was two months old when diagnosed. Deidrick's new home became a plastic bubble. Having already been exposed to many germs, Deidrick lost his battle when he was only seven months old. He had no defenses and could not overcome the infections that attacked his little body.
Two years later, Wesley was born. He too was another victim of SCID. For my young parents, this was devasting. Wesley didn't have a chance at life without a bone marrow transplant, or the knowledge known today through years of research. His battle was over in nine short months. I often think and reflect how wonderful life would have been to grow up with my two older brothers by my side.
I am bless that I have a chance at life because I was able to receive the gift of a bone marrow transplant. As a response to the gift of life that I was given, I volunteer to help bring awareness to all primary immunodeficiency diseases. There is still such a great need for research and education.
Perhaps telling my story will provide many new infants a chance at a healthier life. Being a mentor to younger children who suffer the same disease as I do brings me great joy. I'm grateful they have someone to look up to that is leading a "awesome" life while living with this disease.
My hope and prayers are other families will not have to endure the pain and suffering as my family did.
With increased awareness, funds can be raised to continue to support the entire PI community.