BENEFITING: EB Research Partnership
ORGANIZER: EB Research Partnership
EVENT: NYC Half 2013
EVENT DATE: Mar 17, 2013
Greetings Family and Friends
I just shared my credit card information to support a fund-raising effort with a woman from New Jersey whom I’ve never met. I know what you are thinking – this sounds like the beginning of a Sopranos episode. I will elaborate.
While I have been blessed to participate in many racing events over the years, on March 17th, I will be running the NYC Half Marathon to support the Jackson Gabriel Silver Foundation (JGSF), a nonprofit organization that was introduced to me by Faye Dilgen, a former student whom I now call friend and mentor.
Stop right here – I think I know what you are thinking. Like me, I suspect you receive a fair amount of requests for financial support throughout the year. I’ll enter my full disclaimer here: 1) When I receive such requests, I often times stare blankly at the computer screen and attempt to make a thoughtful and challenging decision; that is, whether this is a time I can contribute or simply a time to offer a prayer. I am kindly asking you to do one, either, or both. 2) For me, this is not about participating in the NYC Half Marathon; it is a belief in a cause.
JGSF was founded by Alex and Jamie Silver, whose son Jackson was born with Epidermolysis Bullosa ("EB"), a disfiguring and currently incurable blistering disorder that affects children from birth. Children like Jackson have a 60% risk of dying by age 15, and nearly a 100% chance of developing an aggressive and fatal form of skin cancer over the course of a shortened life. The foundation funds scientific research with the goal of curing and treating this devastating disease
My genuine request: If this is a time where you can contribute words will not do justice for my gratitude. In either case, please offer a prayer!
Only the best; always, Anthony
JACKSON GABRIEL SILVER FOUNDATION INC wrote -
The Jackson Gabriel Silver Foundation is a nonprofit organization founded with the mission to treat, cure, and end Epidermolysis Bullosa ("EB"). EB is a devastating and life-threatening skin condition that affects children from birth. Individuals with EB lack a critical protein that binds the layers of skin together. Without this protein, skin tears apart, blisters, and shears off, leading to severe pain, disfigurement and wounds that never heal.
The Jackson Gabriel Silver Foundation ("JGSF") is aggressively funding research and supporting the tremendously encouraging and viable scientific work taking place at leading institutions around the country, including Stanford, USC, and the University of Minnesota. In three short years, JGSF has raised over $1 million and has made a significant difference in the field of EB research and the pursuit of a cure.
Thank you all for your support in continuing our mission!
Click here to visit our official website.
Click here to visit our charity profile page on CrowdRise.