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Jim Bianchi's Fundraiser:

Jim's Half-Marathon Run for Ermias & EB

Jim's Photo

BENEFITING: EB Research Partnership

EVENT DATE: Sep 25, 2016

Jim Bianchi

THE STORY:

Meet my friend Ermias. He’s a bright, happy, fun-loving 4-year-old kid from Seattle … and he needs our help. He is one of some 30,000 children across the U.S. who has EB – Epidermolysis Bullosa – a debilitating disorder of connective tissue which causes painful skin blisters after any kind of friction or pressure.

Children with this disease are sometimes known as “Butterfly children” as their skin is as fragile as a butterfly’s wing. Just being picked up by a parent, wearing a shirt or walking can cause damage – so their daily life is filled with blisters and pain. Yet despite that, little Ermias inspires us all with his big heart and his tireless spirit.

To help the EB Research Partnership - EBRP (a 501(c) 3 non-profit - https://ebresearch.org/) - to find a cure for this dreadful disorder afflicting Ermias and other kids like him who can’t run without pain, I’m running in Ermias’ honor at the Brooksie Way Half Marathon on Sept. 25, 2016 in Rochester, Michigan.

On behalf of these kids, I am looking for some people to sponsor my 13.1-mile run to raise funds for the EBRP non-profit. With your support, some day kids like Ermias will be able to experience the joys of everyday life without pain.

I’m also running as a show of solidarity and encouragement for Ermias’ dad, Aaron Blank (the CEO of our PRGN partner in Seattle) who detests running but has agreed to run the 2016 San Jose Rock ‘N Roll Half Marathon in October, in hopes of raising $10,000 for EBRP.

Now matching Aaron's target would be quite a challenge, but we all know that the people of the Detroit PR and automotive communities are always at their best when faced with challenges.

I hope you can join me by sharing my post with your friends and colleagues, learning more about EB, and perhaps even sponsoring my run at any donation level – every little bit will help!

On behalf of Ermias and the thousands of other kids just like him, thank you in advance for your consideration!

#‎JBRun4Ermias

DONATE

To This Fundraiser

$1,775

MONEY RAISED
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  • Bianchi PR

    $100

  • David Landis & Sean Dowdall

    $100

  • Patsy Pennington

    $100

  • Anonymous

    $25

  • Jessica, Ana, Leslie, Jaclyn & Jenny

    $150

  • Michael Smetanka

    $75

  • Nick Lucido

    $50

  • Pat & Rob

    $50

  • John & Terry

    $100

  • Lynette

    $100

  • Dave & Sharon Spaight

    $100

  • Ann Bruttell

    $100

  • Jim Caputo

    $100

  • Rob and Cheri Marusa

    $100

  • Anne Buchanan

    $100

  • The Ray's

    $100

  • Rod and Kathy Ratowski

    $50

  • Daniel Saad

    $25

  • Matt & Barb Lucido

    $50

  • Near Perfect Media

    $100

  • Angela Bianchi

    $100

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36% Raised of $5,000 Goal

Fundraise for this Campaign

The Team: $1,775 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Angela Bianchi

Angela Bianchi

DONATION: $100

Rounded up a little from that two-minute difference! 10 months ago

Near Perfect Media

Near Perfect Media

DONATION: $100

11 months ago

Matt & Barb Lucido

Matt & Barb Lucido

DONATION: $50

11 months ago

Daniel Saad

Daniel Saad

DONATION: $25

11 months ago

Rod and Kathy Ratowski

Rod and Kathy Ratowski

DONATION: $50

11 months ago

The Ray's

The Ray's

DONATION: $100

11 months ago

Anne Buchanan

Anne Buchanan

DONATION: $100

In support of Jim's selfless run and with great love and healing hope for Ermias and his amazing family. 11 months ago

Rob and Cheri Marusa

Rob and Cheri Marusa

DONATION: $100

Abundant joy in making a difference...thank you 12 months ago

Jim Caputo

Jim Caputo

DONATION: $100

From Aunt Mimi and Uncle Jim 12 months ago

Ann Bruttell

Ann Bruttell

DONATION: $100

Good luck with the run and I hope you make your financial goal. 12 months ago