It is a privilege to be part of the Neurofibromatosis (NF) Boston Marathon team for the third year in a row. NF is a genetic disorder that can cause tumors to form on the nerves anywhere in or on the body at any time. At this time there is no effective treatment or cure for NF. NF affectts three times as many people as muscular dystrophy and cyctic fibrosis combined.
Like most people, I had never heard of NF until it touched our family personally. Our niece, Jennifer, is a beautiful, intelligent, energetic 9 year old. She was diagnosed on her first birthday with NF1. So far she is enjoying a normal healthy childhood. At this point it is uncertain how severe her symptoms might become. Living with these uncertainties creates great worry for the parents and loved ones of a child with NF.
This is why raising awareness of NF and funding research is so important. Over the last two years we have raised over $7000 with the generous support of many old friends, new friends and family members. We are so grateful to all of you for your generosity. This year we hope to exceed our past goals and reach the $10,000 mark with your help!
Please forward this link to anyone who you may think would wish to supoort this worthy cause.
If you would prefer to use a check please make your donation to :
NF Inc. Northeast. 9 Bedford St. Burlington MA 01803 (Please indicate the check is for John Carey's fundraising).
Some employers will match employee donations - please inquire.
John, Susan, Joseph & Isaac Carey
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