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APBD RESEARCH FOUNDATION's Fundraiser:

Jojo and Chloe run the 2017 NYC Marathon to raise funds for curing APBD

APBD RESEARCH FOUNDATION's Photo
APBD RESEARCH FOUNDATION's Photo
APBD RESEARCH FOUNDATION's Photo
 

Penn Medical announces 2018 MDBR awards. We are excited to congratulate Drs. Akman and Kakhlon this year's APBD- MDBR Grant Awardees!
January 03, 2018

Penn Medical announces 2018 MDBR awards. This was the 4th Annual  Million Dollar Bike Ride We are  excited to congratulate Drs. Akman and Kakhlon  See more

THE STORY:

 There is reason for hope for patients with Adult Polyglucosan Body Disease - APBD - which is a devastating degenerative neurological disease - whose symptoms mimic those of MS.  APBD affects women and men  between ages 35 and 50 and progresses relentlessly. At the moment, there  is no treatment or cure for APBD. 

BUT NOW - A new discovery is setting the APBD community abuzz. 

Preliminary  studies show that Guaiacol, a naturally occurring substance used in  many cough medicines, may increase the length of an APBD patient’s life  with very little in the way of side effects. It may halt the progression  of deadly symptoms as well. Researchers are also hopeful that it will  help patients with other, related diseases. 

Hadassah  Medical Center in Israel is preparing to begin a clinical trial using  Guaiacol. We need your help to take advantage of this amazing  opportunity and lay the groundwork to bring a clinical trial to patients  in the United States.

Like our marathoners Jojo and Chloe, we need to keep going. Help us bring a clinical trial to all APBD patients.

We're almost there.


DONATE

To This Fundraiser

$51,010

MONEY RAISED
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  • Sharon Steinberg

     

  • Sheila(Sudit)Bontreger

     

  • Lesley Levenson

    $180

  • Leslie Cohen and Irwin Mendlinger

    $100

  • Sheri Aleksander

     

  • Marko

    $100

  • Debbie, Harlan & Daniel

    $100

  • Sheila Sudit Bontreger

     

  • Ellie and Ira

    $100

  • Charlie, Alexandra and Abe The Babe

    $150

  • madeline gatti

    $50

  • Ellen and Sam Banov

    $50

  • Hofman

    $109

  • Anonymous

    $100

  • Leslie Cohen

    $100

  • Barbara and Stephen Hart

    $50

  • Larry and Lori Weiss

    $500

  • Lavonne Fore and Mack Karesh

    $100

  • Laura and David Epstein

    $500

  • Peter Joseph

     

  • Lisa Karesh

     

  • Levenson-Greenberg Family Foundation

    $4,000

  • Coddon Family Foundation

    $4,000

  • Chuck and Harriet Saxe

    $5,000

  • Mike Epstein

    $250

  • Suzy & Sol Levy

     

  • Sheila Epstein

    $200

  • Gertraud Eizenberger

     

  • Levenson-Greenberg Family Foundation

    $2,500

  • Coddon Family Foundation

    $2,500

  • Lipsig Family Foundation

    $5,000

  • Wendy and Robert

    $100

  • Rachel DuShey

     

  • Milton Adesnik

    $100

  • Gigi Coddon

    $100

  • Paula Berg

     

  • Nina Tornabene

    $50

  • Bob Epstein and Beth Hisler

    $50

  • For all of us.

    $50

  • Marcus Weiss

    $1,800

  • Jim Meier and Rabbi Judith Edelstein

    $360

  • Deborah Goldman

    $75

  • Levenson-Greenberg Family Foundation

    $1,500

  • Coddon Family foundation

    $1,500

  • Mark Werner

    $25

  • Peggy & Richie Grin

    $100

  • Sara and Oren

     

  • Florence Slatkin

    $50

  • Howard Epstein

     

  • Cindy and Stu Lamberg

     

  • Anonymous

    $250

  • Jodi and Eric Kleiner

     

  • Larry Schwartz

     

  • Linda D. Schloss

     

  • Shari LaPayover + Madison Crincoli

     

  • Leslie Keena

     

  • Coddon Family Foundation

     

  • Levenson- Greenberg Family Foundation

     

  • Audrey Stone and Tamir Rosenblum

     

  • Barbara and Stephen Hart

     

  • Peter Weiss

    $180

  • Custom Ink

    $20

  • Emil & Marianna Weiss

     

  • Barbara & Bruce Bazelon

     

  • Levenson-Greenberg Family Foundation

    $1,000

  • Coddon Family Foundation

    $1,000

  • Dr. Jack and Linda Dushey

    $1,360

  • Marcia Weiser

     

  • Sam Sturm

    $180

  • Sandy Lespinasse

    $100

  • Teddy Weiss & family

     

  • Michelle Weiss Sandler & family

     

  • The Brecher Moskowitz Family

    $250

  • Chloe and Jake Lev-Mendlinger

    $108

  • Michael Cohn

    $25

  • Coddon Family Foundation

    $500

  • Suzanne Jacoby

    $10

  • Levenson-Greenberg Family Foundation

    $500

  • Richard Bayram

    $25

  • A & A

    $36

  • The Berkowitz-Stallman Family

    $180

  • Louise Sherby

     

  • Julie Raskin and Mark Gross

    $100

  • Phyllis S.

    $36

  • Jessica R. Friedman

    $20

  • Laura & David Epstein

    $100

  • Pat & Larry Schatt

    $25

  • Sheila Sudit Bontreger

     

  • Leslie Cohen

    $100

  • Janett Edelberg

     

  • Allen and Sandra Gartner

     

  • Kallu Family

    $150

  • Coddon Family Foundation

    $10,000

  • Great American Specialty Adv/Claire Holtsford

    $100

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51% Raised of $100,000 Goal

Fundraise for this Campaign

The Team: $51,010 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Great American Specialty Adv/Claire Holtsford

Great American Specialty Adv/Claire Holtsford

DONATION: $100

Coddon Family Fund 5 months ago

Coddon Family Foundation

Coddon Family Foundation

DONATION: $10,000

5 months ago

Kallu Family

Kallu Family

DONATION: $150

5 months ago

Allen and Sandra Gartner

Allen and Sandra Gartner

5 months ago

Janett Edelberg

Janett Edelberg

5 months ago

Leslie Cohen

Leslie Cohen

DONATION: $100

6 months ago

Sheila Sudit Bontreger

Sheila Sudit Bontreger

6 months ago

Pat & Larry Schatt

Pat & Larry Schatt

DONATION: $25

Jojo’s & Cloe’s great performance 6 months ago

Laura & David Epstein

Laura & David Epstein

DONATION: $100

In honor of our children 6 months ago

Jessica R. Friedman

Jessica R. Friedman

DONATION: $20

In tribute to Joannie and Chloe! 6 months ago