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APBD RESEARCH FOUNDATION's Fundraiser:

JoJo runs the NYC Marathon again to raise funds for curing APBD.

APBD RESEARCH FOUNDATION's Photo
APBD RESEARCH FOUNDATION's Photo
APBD RESEARCH FOUNDATION's Photo

BENEFITING: APBD RESEARCH FOUNDATION

EVENT: 2015 TCS New York City Marathon

EVENT DATE: Nov 01, 2015

THE STORY:

There are over 7,000 orphan diseases that affect humankind.

Only 250 of which have any known therapy.

6-8% of the world’s population have an orphan disease.

32 million Americans suffer from an orphan disease.

APBD is one of those diseases.

Adult Polyglucosan Body Disease

• A - Adult (onset at age 40 to 60; often, but not exclusively, affects those of Ashkenazi ancestry)

• P - Peripheral neuropathy(numbness, weakness or tingling in the toes, fingers, hands, and/or feet)

• B - Bathroom (frequent, beyond the norm urination or difficulty with bladder control)

• D - Diminished energy (lethargy may develop later in disease process)

 

JoJo runs again to raise funds for curing APBD. She wants to reverse and prevent the extensive nerve damage that leads to its brutal symptoms. APBD creeps along quietly but finally comes out of the shadows when its victims are in their 30’s-60’s. Slowly but surely, nerve cells get clogged with a sort of debris which damages them severely. The result looks like diseases whose names you might recognize. ALS and MS are two. In fact, APBD is often misdiagnosed as one of those diseases. Right now, there is no treatment for APBD, but our scientists have developed some highly promising leads. Cures for APBD will potentially benefit number of related genetic disorders. These disorders can affect people in the prime of life, as young adults, as infants, and even the unborn. Your donation will make a world of difference in many lives!

$47,222

MONEY RAISED
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  • Anonymous

    $180

  • Sharon Steinberg

    $100

  • Mark Snyder

    $100

  • Ellie and Ira

    $100

  • Susan Abramowitz and Aaron Gurwitz

     

  • Sheila B.

    $25

  • Shari LaPajower

    $54

  • Diane & Barry Eisenstat

    $100

  • Janett Edelberg / from T&V

     

  • Jonathan Fram

    $1,000

  • Laura and David Epstein

     

  • Judith Edelstein and James Meier

    $100

  • Ethan Ellenberg & Barbara Glickstein

    $100

  • Moskowitz/Brecher family

     

  • Lesley Levenson

    $100

  • Emil Weiss

    $540

  • Nina Tornabene

    $54

  • Sheri & Alan Aleksander & family

    $100

  • Deberah Goldman

    $54

  • Milton Adesnik & Judith Hauptman

    $100

  • Charlie Wittenberg

    $52

  • Alexandra Reingold

    $26

  • Chuck. and Harriet

    $5,000

  • Debbie, Harlan and Daniel

    $118

  • Joan Grodnick

    $100

  • Nikki Neretin and Ted Greenberg

     

  • Barbara & Stephen Hart

    $36

  • Joshua Goldman

    $100

  • Marvin Natowicz and Sherri Broder

    $100

  • Crisp restaurant

    $50

  • Chloe Levenson

     

  • Hanniel Levenson

     

  • Linda & Jack

    $1,000

  • AnneMarie Donelin

    $50

  • Jane Davidson & Larry Sebert

     

  • Anonymous

     

  • Avi Goldshtein

    $150

  • Beth Mann

     

  • Joan Grodnick

    $100

  • Coddon Family foundation

    $10,498

  • Joan and Bob Lipsig

    $1,000

  • Coddon Family foundation

    $1,000

  • Cindy Lamberg

     

  • Riva Touger-Decker & Brian Decker

     

  • Alma & Moki

    $75

  • Gale & Stephen Barnett, Jared Barnett & Sarah Zullo, Ari Shagal & Alex McBr

    $150

  • Victoria Cooper

    $100

  • David and Aileen

    $54.87

  • Tom Gibbons

    $100

  • Harriet & Tom Quinn

    $500

  • Robert Epstein and Beth Hisler

    $50

  • Steve and Cathy Fox

     

  • Lisa Karesh

     

  • Florence Slatkin

    $100

  • Coddon Family Foundation

    $0

  • Coddon Family Foundation

    $1,344

  • Jodi and Eric Kleiner

     

  • Gail and Craig

    $180

  • Wendy and Rob

    $100

  • Mark Schlesinger DDS

    $100

  • Julie

     

  • Marjean Coddon

    $10,000

  • Argent Trust

    $100

  • Michael Cohn

     

  • Rollin and Karen

     

  • Jackie Berkowitz and Michael Stallman Charles and Simone Stallman

    $180

  • Anonymous

     

  • Sara and Oren

    $100

  • Emily Coddon

     

  • Coddon Family foundation

    $9,658

  • Sandra Lespinasse

     

  • Lynn and Kent Regenstein

     

  • Sean & Beth Gordon

    $100

  • Claire Holtsford

    $100

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90% Raised of $52,400 Goal

The Team: $47,222 TOTAL RAISED SO FAR

Fundraiser Title

Coddon Family Foundation

Amount Raised

$34,174

 

152% Raised of $22,500 Goal

Fundraiser Title

APBD RESEARCH FOUNDATION

Amount Raised

$13,048

 

25% Raised of $52,400 Goal

Fundraiser Title

Robert Lipsig

Amount Raised

$0

Fundraiser Title

james neese

Amount Raised

$0

Fundraiser Title

Rick Streicher

Amount Raised

$0

Donor Comments

Claire Holtsford

Claire Holtsford

DONATION: $100

2 years ago

Sean & Beth Gordon

Sean & Beth Gordon

DONATION: $100

Thank you for creating this fund raiser. Good luck on the run. 2 years ago

Lynn and Kent Regenstein

Lynn and Kent Regenstein

2 years ago

Sandra Lespinasse

Sandra Lespinasse

2 years ago

Coddon Family foundation

Coddon Family foundation

DONATION: $9,658

2 years ago

Emily Coddon

Emily Coddon

2 years ago

Sara and Oren

Sara and Oren

DONATION: $100

2 years ago

Anonymous

ANONYMOUS

2 years ago

Jackie Berkowitz and Michael Stallman   Charles and Simone Stallman

Jackie Berkowitz and Michael Stallman Charles and Simone Stallman

DONATION: $180

In honor of our very special friend and to support the important work of this foundation 2 years ago

Rollin and Karen

Rollin and Karen

2 years ago