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Leanne Jolly's Fundraiser:

Jolly run for Butterfly Children

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We did it!!!
April 29, 2017

Today was the day!! It was great weather and an amazing marathon and we represented EB well!!!! Jolly even had someone tell him thank you for  See more
Leanne Jolly

THE STORY:

Epidermolysis Bullosa is a disease I just recently learned about through a virtual 5k I did. I love to run, it is my outlet for stress and I just love how it makes me feel. I love for my runs to have meaning and purpose and this one has touched my heart. EB is an extremely painful disease that you are born with. Your skin on your entire body blisters and peals from the slightest amount of friction. It even affects your throat from the friction of eating. Life 24/7 is full of pain. Kids living with EB are called Butterfly Children because their skin is as fragile as Butterfly wings. This video was on the virtual run page I did the 5k for and I want to do more for these children then just that 5k. So over Christmas Jolly and I registered for the Nashville half marathon and it is at the end of this month. This is a little last minute but I've just learned about EB and want to try to raise money and have our 13.1 miles honor those living with EB. So I'm hoping our family and friends will want to donate.... $13.10....in honor of our run. The money goes directly to the EB charity. Our goal is $500 and Jolly and I will match that to give a total of $1000!!! Please help us honor those children and give to their fight to find a cure!! God Bless!! https://youtu.be/iuYxGtuBSgk

DONATE

To This Fundraiser

$1,550

MONEY RAISED
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  • Anonymous

     

  • Anonymous

    $13.10

  • Krysta Resha Henson

     

  • Kevin, Amelia, and Keegan Campbell

     

  • Jennifer Lundie

    $50

  • Anonymous

    $25

  • Anonymous

    $25

  • SANDY TOUNGETTE

    $40

  • Anonymous

    $25

  • Sunny & Butch

     

  • Anonymous

    $25

  • Hunter Rice

    $50

  • Kim Henderson

    $25

  • Bryan and Heather

    $50

  • Mark & Sandy

    $25

  • Greg and Leanne

    $500

  • Rick and Karen hollis

     

  • Mike, Pandora , Peyton and Tuck

    $60

  • Jaci kirkham

    $25

  • Carol Barnhill

    $13.10

  • Ben Faulk

    $50

  • The Brown Family

    $50

  • LaQueta Walker

    $20

  • Shelly Barnes

    $50

  • Parker Jolly

    $20

  • Chris Turbeville

    $13.10

  • Chris West

     

  • Liz and Ryan

    $50

  • Joe & Cathy Duncan

    $25

  • Ruffus Jackson Sloan

    $25

  • Alton & Kathy Lassiter

    $30

  • jamie morgan

    $25

  • Kathy Vineyard

    $26

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310% Raised of $500 Goal

Fundraise for this Campaign

The Team: $1,550 TOTAL RAISED SO FAR

JOIN THE TEAM

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Donor Comments

Kathy Vineyard

Kathy Vineyard

DONATION: $26

1 year ago

jamie morgan

jamie morgan

DONATION: $25

1 year ago

Alton & Kathy Lassiter

Alton & Kathy Lassiter

DONATION: $30

1 year ago

Ruffus Jackson Sloan

Ruffus Jackson Sloan

DONATION: $25

1 year ago

Joe & Cathy Duncan

Joe & Cathy Duncan

DONATION: $25

so proud of you Jollys 1 year ago

Liz and Ryan

Liz and Ryan

DONATION: $50

1 year ago

Chris West

Chris West

1 year ago

Chris Turbeville

Chris Turbeville

DONATION: $13.10

1 year ago

Parker Jolly

Parker Jolly

DONATION: $20

1 year ago

Shelly Barnes

Shelly Barnes

DONATION: $50

2 years ago