Jonah Puruleski's Trisomy 18 Journey
Organized by: Allen Jairone Dio
I can do all things through Christ who strengths me. Philippians 4:13 Jonah Michael was born at 37 weeks on April 26th 2016 weighing in at 3 lbs 12 oz. to the proud parents of Greg and Heather Puruleski and older siblings Hailey, Carter and Isabelle. On November 23rd Jonah was diagnosed with Trisomy 18, also known as Edwards' Syndrome, a very rare condition that causes severe developemental delays due to an extra chromosome 18. Fewer than 20,000 are diagnosed with this disease each year in the US. This disease can affect many parts of the body, with Jonah it's mainly his heart. With the odds stacked against him during the 1st few months of Heather's pregnancy and many discouraging words from the doctors Heather and Greg stood strong fighting for Jonah's life. Currently, they await word from the last few hospitals available to perform the surgery that Jonah depends on to survive. In the event that neither of the remaining hospitals will do the procedure on Jonah's heart, it is inevitable that Jonah's time with us on this earth will be shorter than any parent could ever dream of as he is called home to Jesus. Whichever path God chooses for Jonah and his family, there are going to be many non-covered expenses that they could never have dreamed of or planned for. Several people have approached me lately wondering how they can help. Heather and Greg would never want me to do this, but I feel strongly about allowing those that truly feel called to help to do so. By setting up this gofundme page, it gives those that wish to help an easy way to do so without having to ask the family "what do they need". If you truly feel called to help this family through this difficult time, your generosity would be greatly appreciated. Quoted from the story of Jonah and the Whale, the story of how Jonah got his name: "Take me up and throw me into the sea; then the storm will cease and the waters will be calm; for I know that for my sake this great tempest is upon you."