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Kathy Kurek's Fundraiser:

Jon, Matt & Kathy for Eva!

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Kathy Kurek

THE STORY:

THE STORY:

Rett Syndrome is the most physically disabling of the autism spectrum disorders, primarily affecting girls, and usually strikes by 18 months of age. It is caused by mutations on the X chromosome on a gene. As the cascade of Rett Symptoms descends, a child loses acquired skills, normal movement and speech, then begins the long regression that may leave her in a wheelchair, unable to communicate or use her hands. Extreme anxiety, Parkinson-like tremors, seizures and orthopedic problems are common.



Imagine having a beautiful, healthy daughter who is achieving all of the milestones for her age and then those milestones slowly disappear. She no longer plays with her favorite toy, she no longer runs around in the back yard the way she used to, and she can no longer tell you she loves you.



Eva is a precious, sweet little girl who has Rett Syndrome. We will be running in the Hambletonian Marathon in honor of Eva. All the training that we will do to prepare for this marathon pales in comparison to the struggles that our little friend Eva and other little girls with Rett Syndrome will go through every day. Please help us contribute in the much needed research for Rett Syndrome and find a cure

$1,280

MONEY RAISED
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  • DeFusto Family

     

  • The Marone Family

    $20

  • John Cahill

    $60

  • Missy & John Gahan

    $200

  • Jim & Liz Ciolino

    $50

  • The Ferrara Family

    $100

  • Kilma McKenniss

    $10

  • Don & Kristin Steinmetz

    $25

  • Sparkle Girls Jewelry (Angie Reynolds)

    $25

  • The Timlers - John, Christine, Jessie & Casey

    $25

  • The Rudman Family

    $25

  • Bill and Ann Marie Miller

     

  • Stacie and Addie Patterson

    $50

  • Mike Kane

    $100

  • Tim and Patti

    $100

  • Anonymous

     

  • Adam Moloney and Familiy

    $100

  • Pucci family

     

  • Festa family

    $50

  • SAS

    $25

  • The Laskoski Family

     

  • Henshaw Family

    $100

  • Aunt Maureen

    $100

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128% Raised of $1,000 Goal

The Team: $1,280 TOTAL RAISED SO FAR

Fundraiser Title

Matt McGuire

Amount Raised

$1,010

Fundraiser Title

Kathy Kurek

Amount Raised

$210

 

21% Raised of $1,000 Goal

Fundraiser Title

John Cahill

Amount Raised

$60

Donor Comments

Aunt Maureen

Aunt Maureen

DONATION: $100

Good Luck!! 4 years ago

Henshaw Family

Henshaw Family

DONATION: $100

4 years ago

The Laskoski Family

The Laskoski Family

4 years ago

SAS

SAS

DONATION: $25

4 years ago

Festa family

Festa family

DONATION: $50

4 years ago

Pucci family

Pucci family

Good luck:) 4 years ago

Adam Moloney and Familiy

Adam Moloney and Familiy

DONATION: $100

You are all an inspiration!!! 4 years ago

Anonymous

ANONYMOUS

4 years ago

Tim and Patti

Tim and Patti

DONATION: $100

4 years ago

Mike Kane

Mike Kane

DONATION: $100

4 years ago